Long COVID
Mild → near normalIll 22 months before improving or writing
Long COVID joint aches, tingling and palpitations, nearly back to normal after pregnancy
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 22 months
- Last post
- Aug 2024
In their words
- At worst: Mild
Which is not ideal when having to work a full time job
In context ↗ - Now: Near normal
Yes! Joint pain here and there but overall, better. I even had a baby.
In context ↗
Read from 39 of their posts and comments; links to the 22 this page draws on
Summary
A 27-year-old woman developed widespread joint and muscle aching, tingling hands, night sweats and palpitations after a three-week infection in late 2022. A 10 mg beta blocker at night stopped her night-time palpitations and waking panic, though she had to keep taking it, and she continued working full time. Many symptoms went away during pregnancy, and by August 2024 she felt better overall with only occasional joint pain.
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What they tried
Also tried
beta blocker (propranolol)· Helped a lotice cube on face· Helped a lotCBD gummies· HelpedOTC ear drops· Helpedhot baths· Helpedibuprofen, aleeve, Tylenol· No changeBenadryl· No changevitamin D supplements· No changeCymbalta· Worsetrazadone· WorseAtivan· Not saidLiquid IV· Not saidlavender and chamomile tea· Not saidlavender and chamomile tea· Not saidMelatonin· Not said
Their words about each treatment
- ibuprofen, aleeve, Tylenol · No change
No NSAID’s work, Benadryl hasn’t helped.
In context ↗ - Cymbalta · Worse
I tried Cymbalta to cover anxiety and the body pain I’m having.. could only handle two days of it.
In context ↗ - Ativan · Not said
Yep, Ativan if your doctor will prescribe it. Mine won’t, so here I am taking my husbands as needed
In context ↗ - trazadone · Worse
I have trazadone but have only taken it maybe twice because I wake up feeling so foggy.
In context ↗ - beta blocker (propranolol) · Helped a lot
But the medication was helping me tremendously, I may have to restart it.
In context ↗ - CBD gummies · Helped
Wyld brand CBD gummies (no thc), I’ve always been really against CBD anything, but decided to try it out and it really helps calm me.
In context ↗ - OTC ear drops · Helped
I did some otc ear drops and that helped the pain not be so frequent but it’s obviously still there.
In context ↗ - Liquid IV · Not said
Liquid IV is whatI think brought my ketones down
In context ↗ - vitamin D supplements · No change
Supplements aren’t helping me either it’s miserable.
In context ↗ - hot baths · Helped
Hot baths occasionally help but only momentarily.
In context ↗ - lavender and chamomile tea · Not said
Lavender and chamomile tea before bed
In context ↗ - ice cube on face · Helped a lot
I do rub an ice cube on my face each morning and it helps me tremendously. Makes me feel human
In context ↗ - Melatonin · Not said
I don’t like the ones with melatonin.. bad dreams
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022-12-24 | constant joint and body pain, panic on waking, night sweats, still workingY’all I am DESPERATE for some relief from this symptom.In context ↗ | Mild | |
| 2023-01-15 | night-time palpitations and waking panic stopped on a low-dose beta blockerBeta blocker really helped me with the fight or flight and palpitations.In context ↗ | Mild | Propranolol (Inderal) |
| 2023-03-08 | felt a little better, at least mentallyMonth 5… feel like I’m getting a little better? Maybe just mentally better.In context ↗ | Mild | |
| 2023-10-13 | facial numbness returned with vengeanceIt went away for months but has returned with vengeance.In context ↗ | Mild | |
| 2024-05-29 | many symptoms went away during pregnancyI am feeling pretty good these days. I’m 7 months pregnant now and so many of my symptoms when away upon getting pregnant… weirdIn context ↗ | Near normal | |
| 2024-08-26 | better overall with occasional joint pain after having a babyYes! Joint pain here and there but overall, better. I even had a baby.In context ↗ | Near normal |
Adverse events
- Duloxetine (Cymbalta)“I tried Cymbalta to cover anxiety and the body pain I’m having.. could only handle two days of it. ... It made me very dizzy and I didn’t wanna hold my head up.” Side effects
- Trazodone (Desyrel)“I have trazadone but have only taken it maybe twice because I wake up feeling so foggy.” In context ↗ Side effects
- Melatonin“I don’t like the ones with melatonin.. bad dreams” In context ↗ Side effects
- Propranolol (Inderal)“I’ve been on a beta blocker for about 6 days now to help with the sweating and palpitations caused by anxiety and they seem to worsen, not improve.” In context ↗ Made symptoms worse
- Propranolol (Inderal)“I’ve noticed anemia symptoms since starting and I have never been anemic. My toes will turn dark dark purple when I’m cold and my under eyes are almost always very dark.” In context ↗ Blood count problems
- Propranolol (Inderal)“Yes I have been way more sleepy since taking them.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeart symptoms & palpitationsNeuropathy & tinglingSleep problemsTemperature regulation
Their words about their symptoms
- Neuropathy & tingling
Neuropathy type pain. Tingling numbness. It eventually went away.
In context ↗ - Heart symptoms & palpitations
today I am feeling my heart doing gymnastics in my body
In context ↗ - Sleep problems
No more palpitations at night or waking up in panic
In context ↗ - Anxiety & low mood
I have very very bad health anxiety from everything that’s going on
In context ↗ - Brain fog
I have trazadone but have only taken it maybe twice because I wake up feeling so foggy
In context ↗ - Temperature regulation
Every night I wake up and immediately check my underarms or chest for sweat.
In context ↗ - Flu-like symptoms
they were definitely somewhat enlarged when found
In context ↗