Long COVID brain fog, fatigue and chest pain, improved then relapsed; Paxlovid no help
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- May 2022
In their words
- Condition: Long COVID
I've been long hauling for 25 months now.
In context ↗ - At worst: Mild
1-3 months with long covid symptoms (primarily brain fog, fatigue, chest pains) ... followed by 1-2 months where I feel nearly 100%.
In context ↗ - Now: Relapsed
I've been long hauling for 25 months now. ... I solely get triggered through mental things
- Began after: COVID
1-3 months with long covid symptoms (primarily brain fog, fatigue, chest pains)
- Says they never had: Post-exertional malaise
No PEM.
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Writing in 2022, this long COVID patient described cycling since about May 2020: one to three months of brain fog, fatigue and chest pain, then one to two months feeling nearly 100%. Some relapses swelled the spinous processes up their spine. Nine days of Paxlovid did nothing, and at 25 months they were still long hauling; mental stimulation made them feel ill, while hiking was good for them.
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What they tried
What they credit
Also tried
Their words about each treatment
- Paxlovid · No change
Yes, I did 9 days of Paxlovid actually. ... It did not do anything to my long covid sadly.
In context ↗ - Hiking · Helped
Hiking is actually really good for me...
In context ↗
Approaches: Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 16 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021-09 | relapse with swollen spinealso relapsed in late SeptemberIn context ↗ | Mild |
| 2022-01 | nearly 100% between relapsesfollowed by 1-2 months where I feel nearly 100%In context ↗ | Near normal |
| 2022-05-16 | still long hauling; mental stimulation triggers symptoms, hiking goodI've been long hauling for 25 months now.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
primarily brain fog, fatigue, chest pains
In context ↗ - Heart symptoms & palpitations
chest hurt, fatigue
In context ↗ - Pain & fibromyalgia
relapses have also swollen my spinus processes all the way up my spine (and the swelling does not reduce naturally)
In context ↗
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