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Long COVID Severe → somewhat betterIll 2 months before improving or writing

Bedbound for four weeks with long COVID, now some improvement and walking with crutches

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 months
Last post
Sep 2022
In their words
  • Condition: Long COVIDWent from being bedbound for 4 weeks to now being able to slowly walk with arm crutches 8 weeks post infection. In context ↗
  • At worst: SevereWent from being bedbound for 4 weeks In context ↗
  • Now: Somewhat betterWent from being bedbound for 4 weeks to now being able to slowly walk with arm crutches 8 weeks post infection. Making it slowly but surely! In context ↗
  • Began after: COVID8 weeks post infection In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Eight weeks after a COVID infection in 2022, they had been bedbound for four weeks and were relearning to walk, using arm crutches and Wii Fit in rehab, with leg spasms and poor balance. Brain fog made it challenging to form sentences, read or recall words. They described slow but steady improvement, walking slowly with crutches at the time of writing.

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What they tried

Their words about each treatment
  • rehab and Wii Fit · HelpedI'm in rehab and playing wii Fit to help me slowly teach my legs how to move correctly again. Went from being bedbound for 4 weeks to now being able to slowly walk with arm crutches 8 weeks post infection. In context ↗

Approaches: Physiotherapy and rehab

Their path

Very severeSevereModerateMildNear normalRecovered2 wk2 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022COVID infection8 weeks post infection In context ↗Not stated
2 wkbedbound for four weeksWent from being bedbound for 4 weeks In context ↗Severe
2022-09-12relearning to walk with arm crutches, doing rehab and Wii Fitnow being able to slowly walk with arm crutches 8 weeks post infection In context ↗ModerateGraded rehab and self-made programmes

Symptoms mentioned

Their words about their symptoms
  • Brain fogIt was so challenging to form sentences, to read, to write, to understand people, to recall memories or common words. In context ↗
  • Muscle weaknessI've been relearning how to walk again In context ↗
  • POTS & dysautonomiaStanding normally on flat ground, I feel so off balance like I'm on a tightrope In context ↗

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