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Long COVID Moderate → relapsedIll 5 years before improving or writingNeeds ongoing treatment

Long COVID with needle pain; full recovery for a year then relapse after reinfection

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
5 years
Last post
Oct 2026
In their words
Read from 12 of their posts and comments; links to the 10 this page draws on

Request to remove this story

Summary

Long COVID since 2021 left Beacon 74755 with needle pain and HRV drops after overdoing things. They fully recovered for a year, fell back to 80% (no sports), then a COVID infection dropped them to about 30%; they recovered to roughly 70% within three months while taking slowly titrated LDN (2.2 mg), CoQ10, NADH and magnesium. KPV seemed to help a bit only while they took it, and by late 2026 they felt better overall with increased tracked deep sleep.

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What they tried

Their words about each treatment
  • LDN · HelpedToday I’m at 2,2mg and I can already feel improvement (target is at 4,5mg). In context ↗
  • CoQ10(200mg) · HelpedCoQ10(200mg) + NADH (20mg) ? ... It was a game changer for me. In context ↗
  • stationary bike · HelpedI liked it a lot since it gave me 0 pain and helped everything in my body. In context ↗
  • KPV · HelpedSo far KPV seems to help a bit (it has been 1 week and a half) In context ↗
  • TA1 · No changeThe others didn’t (TA1, BPC, TB500,MOTS-C and DSIP) In context ↗
  • DSIP · No changetried it for a week with Muse and saw zero change. In context ↗
  • BPC 157 · No changeBPC 157 is not useful for thèse condition. I tried it. In context ↗
  • magnesium · HelpedLDN helped me, as well as magnesium. In context ↗
  • antihistamines · Not saidMaybe the LDN or antihistamines I’m taking have helped; hard to say. In context ↗
  • Whoop and Muse EEG headband · Not saidI use Whoop for overnight HRV and a Muse EEG headband for deep sleep. In context ↗

Approaches: Physiotherapy and rehab · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered4.5 y4.8 y5 y5.2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 4.5 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2021long COVID beganYes, LC since 2021 In context ↗Not stated
—full 100% recovery lasting a yearI had a full 100% recovery for 1 year In context ↗Recovered
—down to 80%, could not do sportsbefore going down to 80% (just not being able to do sports) In context ↗Near normal
late 2025COVID again dropped them to 30%Right now I’m at 70% because of a Covid again In context ↗Moderate
March 2026back to 70% with meds and supplementsI’ve never recovered so fast (30% to 70% in 3 months) In context ↗MildLow-dose naltrexone
July 2026at 60-70%, trying KPV peptidesI relapsed 8 months ago, and now I am at 60-70% In context ↗MildBPC-157
October 2026felt better overall; deep sleep 55 to 75 minutesOver the past 2–3 months, I’ve felt better overall In context ↗Mild

Adverse events

  • Low-dose naltrexone“At some point I tried to make it faster by reducing the time between 2 increasing or adding 0,2mg instead of adding 0,1mg. I ended up having bad intestine pain.” In context ↗ Gut side effects

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingit can really help that kind of needle pain. It helped me with it In context ↗
  • Post-exertional malaiseHRV tanks when I overdo things In context ↗

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