Too ill to work with long COVID, now close to normal after time and rest
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Apr 2022
In their words
- Condition: Long COVID
I had been long hauling for 9 months now and its improving loads.
In context ↗ - At worst: Moderate
I lost my business because I was too ill to work.
In context ↗ - Now: Near normal
I am Deffo more fatigued than I was before, but I have started my previous workout routine and my body still gets aches and pains but it's not as bad as I was expecting.
In context ↗ - Began after: COVID
my dad picked it up from work in March ... A day later I got ill
In context ↗
Read from 24 of their posts and comments; links to the 16 this page draws on
Summary
A UK person fell ill with COVID-19 in March 2020 and was too ill to work, losing their business. They had months of relapsing symptoms including headaches, chest pain and sore throats, with a hard relapse in August 2020 after a flu-like illness. They credited time and rest above supplements, improved steadily, and said they were fully better after about two years, though aches and pains remained. A COVID reinfection in March 2022 left them more fatigued.
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What they tried
Also tried
Their words about each treatment
- anitbotics for sibo · Not said
Last week I got put on anitbotics for sibo and started getting a sore throat and headache. I assumed this was probably a die off reaction.
In context ↗ - anti histamines · Worse
I find that anti histamines make my symptoms worse for some reason. Normally makes my muscle pains worse.
In context ↗ - coq10 · Helped
They told me to take some coq10, pqq and sam-e. Its helping a tiny bit so far.
In context ↗ - Vit d · Not said
I took loads of things. Vit d, nac etc all the things recomented but I think time and rest helps the most.
In context ↗ - shoorms / psilocybin mushrooms · Worse
Gave them a shot to see if they help at all, I don't think they do much apart from make my headaches abit worse.
In context ↗ - cannabis (high cbd strain) · Helped
Cannabis is helping me with insomnia and achy joints. Look for a high cbd strain.
In context ↗ - meditation · Helped
I have to meditate daily just to stop focusing on my body. It helps alot
In context ↗ - intense cardio · Not said
I can do intense cardio for a solid 10 mins it hurts my body when I do it but I don't get pem after any more
In context ↗ - rest · Helped
I think time and rest helps the most.
In context ↗
Approaches: Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID-19 caught from fathermy dad picked it up from work in March ... A day later I got illIn context ↗ | Moderate | |
| July 2020 | flare-ups stopped and felt betterThen by the end of June the flare ups had stopped too. ... But we were both better by the end of July | Mild | Time and spontaneous remission |
| August 2020 | relapse after a flu-like illnessI was better then I caught an other flu and my body went back into covid mode. Been ill for about 3 weeks now. Everything I had recovered from came backIn context ↗ | Moderate | |
| 2020-11-25 | improving loads at 9 monthsI had been long hauling for 9 months now and its improving loadsIn context ↗ | Mild | Time and spontaneous remission |
| 2021-02-27 | around 90% of previous selfWould say I am at around 90% of what I wasIn context ↗ | Near normal | Time and spontaneous remission |
| 2022-03-22 | fully better after about two yearsI got fully better after about 2 years ... I can live life like normalIn context ↗ | Near normal | Time and spontaneous remission |
| March 2022 | COVID reinfectionBut I am currently suffering from covid again so hopefully I don't go through it all againIn context ↗ | Mild | |
| 2022-04-07 | more fatigued after reinfection but back to workoutsI am Deffo more fatigued than I was before, but I have started my previous workout routineIn context ↗ | Near normal |
Adverse events
- Antibiotics (unspecified)“Last week I got put on anitbotics for sibo and started getting a sore throat and headache. I assumed this was probably a die off reaction.” In context ↗ Herx / die-off reaction
- H1 antihistamines (unspecified)“I find that anti histamines make my symptoms worse for some reason. Normally makes my muscle pains worse.” In context ↗ Made symptoms worse
- “I had some microdose shoorms before I got covid. Gave them a shot to see if they help at all, I don't think they do much apart from make my headaches abit worse.” In context ↗ Made symptoms worse
- “But then I did 6g and it made me go insane ended up in hospital, thought Facebook was planning world domination” In context ↗ ER visit
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
it hurts my body when I do it but I don't get pem after any more
In context ↗ - Headaches & migraine
My headaches lasted about 6 months
In context ↗ - Sleep problems
I am struggling to sleep
In context ↗ - Pain & fibromyalgia
my body still gets aches and pains
In context ↗ - Anxiety & low mood
my mood is kinda crap
In context ↗ - Heart symptoms & palpitations
With bad chest pain and tightness today
In context ↗ - Flu-like symptoms
I had a constant headache/sore throat for about 2 months after that
In context ↗ - Temperature regulation
I have days where I feel a bit achey and the cold effects me more
In context ↗
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