Bedbound with long COVID, maraviroc and pravastatin helped, then reinfection relapse
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 3 years
- Last post
- Jan 2023
In their words
- Condition: Long COVID
as a first wave long-hauler
In context ↗ - At worst: Very severe
heading towards serious ME/CFS territory - like bedbound, unable to do care for myself level
In context ↗ - Now: Relapsed
I got reinfected six months ago and got way sicker again
In context ↗ - Began after: COVID
I almost died in the beginning in March 2020
In context ↗
Read from 12 of their posts and comments; links to the 5 this page draws on
Summary
Fell ill with COVID in March 2020 and became bedbound, at one point near death. Maraviroc with pravastatin, taken for about a month, stopped the decline and began very slow healing. A March 2022 reinfection destroyed that progress; by early 2023 they were still extremely sick with only a few hours a day of function, describing a moderate ME-like illness.
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What they tried
What they credit
Their words about each treatment
- Maraviroc · Helped a lot
I did use Pravastatin with Maraviroc, it worked well ... I significantly improved with this combination. I still wasn't on them for long enough, about a month.
In context ↗ - Pravastatin · Helped
I'm taking Pravastatin (it definitely helps) ... I did use Pravastatin with Maraviroc, it worked well
Approaches: Antivirals · Statins
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID-19, nearly diedI almost died in the beginning in March 2020In context ↗ | Severe | |
| — | bedbound and unable to care for selflike bedbound, unable to do care for myself levelIn context ↗ | Very severe | |
| 2021 | significant recovery from bedbound, very slow healingI was literally at death's door for so long, and I recovered significantly after eighteen months or soIn context ↗ | Moderate | Maraviroc (Selzentry) |
| March 2022 | set back by COVID reinfectionReinfection in March set me back significantlyIn context ↗ | Severe | |
| 2022-11-03 | not bedbound but extremely sick, a few hours of function each afternoonI'm not bedbound, but still extremely sick. Totally incapable of doing all of the things I used to doIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
They helped me with PEM
In context ↗ - POTS & dysautonomia
They helped me with PEM, fatigue, autonomic dysfunction, muscle weakness and pain
In context ↗ - Muscle weakness
autonomic dysfunction, muscle weakness and pain
In context ↗ - Pain & fibromyalgia
muscle weakness and pain
In context ↗
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