Long COVID fatigue, pain and daily migraines, improved then crashed again
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2024
In their words
- Condition: Long COVID
I have considered it could be long COVID but I get better and then I crash again
In context ↗ - At worst: Mild
I basically sleep every evening taking naps and then on weekends I am stuck cleaning and doing all kinds of stuff
In context ↗ - Now: Relapsed
now my migraines have flared but they won't even consider putting me back on it
In context ↗
Summary
A person with a chronic illness of unclear cause described fatigue, pain, daily headaches and migraines, evening naps, tremors and poor focus, and said they got better and then crashed again. Nortriptyline had long controlled their migraines but was stopped by their neurologist over seizure risk, after which their migraines flared. They were considering long COVID and trying an anti-inflammatory diet.
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What they tried
What they credit
Their words about each treatment
- nortriptyline · Helped
I was on nortriptyline for A LONG time and it was so good. It helped my migraines and I had no more daily headaches.
In context ↗ - Wellbutrin · Helped
I got put on wellbutrin for ADHD symptoms ... Wellbutrin does help me focus.
- qulipta · Not said
They want me to do qulipta which I have tried
In context ↗ - anti-inflammatory diet · Not said
I actually have been (very slowly) working into a more anti-inflammatory diet (per my rheumatologist)
In context ↗
Approaches: Tricyclic antidepressants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | migraines controlled on nortriptyline, could do moreI also at least had some days where I could not a lot and not be completely destroyed the next day. We even went kayaking and were going out and doing thingsIn context ↗ | Mild |
| 2024 | neurologist stopped nortriptyline; migraines flared and tremors startedmy neuro stopped the nortriptyline as he was worried I would start having seizures since I have tremors now. ... now my migraines have flaredIn context ↗ | Mild |
| 2024-10-29 | still napping every evening, in pain, crashing after doing betterI basically sleep every evening taking naps ... I am actually always so tired and in painIn context ↗ | Mild |
Adverse events
- Nortriptyline (Pamelor)“It destroyed my libido and I was kind of numb” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
now my migraines have flared
In context ↗ - Sleep problems
I basically sleep every evening taking naps
In context ↗ - Pain & fibromyalgia
I am actually always so tired and in pain
In context ↗ - Brain fog
I think my lack of focus is due to PTSD
In context ↗
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