Long COVID
Mild → somewhat betterIll 5.5 years before improving or writingNeeds ongoing treatment
Long COVID with intense dizziness and tinnitus, somewhat better with vestibular therapy
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 5.5 years
- Last post
- Sep 2025
In their words
- Condition: Long COVID
I have post viral syndrome from some horrible virus I had May 2020
In context ↗ - At worst: Mild
I Love to exercise. Except when doing so leaves me wrecked for days after
In context ↗ - Now: Somewhat better
I'm not back to baseline but getting better
In context ↗ - Began after: COVID
post viral syndrome from some horrible virus I had May 2020
Read from 13 of their posts and comments; links to the 11 this page draws on
Summary
Fell ill in May 2020 with a post-viral syndrome while CFS was in long-term remission, with intense dizziness and tinnitus; vestibular neuritis was diagnosed and vestibular therapy helped. Low-dose naltrexone did not help. By 2024 they were better yet still had fatigue and heart rate issues; in March 2025 they were not back to baseline but improving. A maskless dinner out in September 2025 left them in bed recovering.
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What they tried
Also tried
Their words about each treatment
- low dose naltrexone (LDN) · No change
I haven't noticed a difference with ldn and ive been on different doses.
In context ↗ - midodrine · Worse
I even got a script for midodrine (couldn't tolerate it)
In context ↗ - vestibular therapy · Helped
The physical therapy seemed awful at first but now it’s kind of fun. ... on retesting they found my system is healing
In context ↗ - naturopath · Not said
Yeah I’ve seen a naturopath and have a friend in naturopath school
In context ↗ - homeopathy · No change
I have never found compelling research supporting homeopathy, nor have those treatments worked for me
In context ↗ - liquid iron supplement · Not said
I do find I love to take my nasty tasting liquid iron supplement
In context ↗ - salted water · Not said
I actually drink salted water (dysautonomia)
In context ↗ - Mg oxide and mg citrate · Helped
Mg oxide and mg citrate both help me with this issue
In context ↗ - therapist · Not said
my therapist said I need to work on motivation to exercise
In context ↗ - estrogen gel · Helped
estrogen gel stopped my hot flashes and I get them back if I miss a day
In context ↗ - COVID vaccination as treatment · Not said
I had side effects from mRNA and not from novavax.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| May 2020 | post-viral syndrome after a virusI have post viral syndrome from some horrible virus I had May 2020.In context ↗ |
| August 2021 | intense dizziness and tinnitus; vestibular neuritis found, twice-weekly vestibular rehabI have had bad dizziness. I had some dizziness before but it has become intense.In context ↗ |
| 2024-05-10 | better but still fatigue and heart rate issuesMy infection was in 2020 and I'm better but still have fatigue and heart rate issues.In context ↗ |
| 2025-03-10 | getting better but not back to baselineI'm not back to baseline but getting better.In context ↗ |
| 2025-09-01 | fell ill after a dinner out without a mask and is in bed recoveringBetter than me, lying in bed angry at myself while recovering.In context ↗ |
Adverse events
- Low-dose naltrexone“I get vivid dreams from the low dose naltrexone” In context ↗ Side effects
- Midodrine“I even got a script for midodrine (couldn’t tolerate it)” In context ↗ Side effects
- Low-dose naltrexone“I get about 4 days of deep dark depression and get weird dreams when I increase the dose, and then I adapt.” In context ↗ Mood or psychiatric effects
- Low-dose naltrexone“I get about 4 days of deep dark depression and get weird dreams when I increase the dose, and then I adapt.” In context ↗ Side effects
- COVID vaccination as treatment“I had side effects from mRNA and not from novavax.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodGut problemsHeart symptoms & palpitationsMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTinnitus
Their words about their symptoms
- POTS & dysautonomia
I actually drink salted water (dysautonomia)
In context ↗ - Mast cell (MCAS) & allergies
I have a full diagnosis of mcas
In context ↗ - Tinnitus
The tinnitus got better but the dizziness persisted.
In context ↗ - Post-exertional malaise
Except when doing so leaves me wrecked for days after
In context ↗ - Heart symptoms & palpitations
still have fatigue and heart rate issues
In context ↗ - Pain & fibromyalgia
He gave it to me for fibromyalgia.
In context ↗ - Gut problems
I have relapsing sibo
In context ↗ - Anxiety & low mood
I get about 4 days of deep dark depression
In context ↗