Long COVID
Mild → near normalIll 18 months before improving or writing
Long COVID brain fog, headaches and dizziness, now nearly back to normal with time and rest
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 18 months
- Last post
- Mar 2023
In their words
- Condition: Long COVID
Neuro LH 3 months later
In context ↗ - At worst: Mild
I’ve been fortunate in the sense that I work from home but my performance has definitely plummeted.
In context ↗ - Now: Near normal
For context, most days I feel fully recovered. I’ll notice some brain fog if I overwork myself and spend too much time on screens.
In context ↗ - Began after: COVID
The original time was primarily headache and head pressure followed by panic episodes three months later that started my long haul.
Read from 33 of their posts and comments; links to the 19 this page draws on
Summary
Nightjar 20168 developed long COVID after a November 2020 infection, with panic attacks, brain fog, headaches, light sensitivity and dizziness in early 2021. They worked from home with reduced performance and improved over about 1.5 years, crediting time, electrolytes, less screen time and rest; amitriptyline, propranolol and fluvoxamine did not help. By March 2023 they felt recovered, with occasional brain fog after overwork, and had not relapsed after reinfections.
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What they tried
What they credit
Also tried
going for walks / spending time outside· Helpedreducing phone screen time / sunglasses for light· Helpeddaily stretches (lymphatic drainage)· Helpedtime in the sun· HelpedCo-Enzyme Q10· Helpedbeer / alcohol· Helped · wore offnattokinase· Helpedsingle shot of coffee· Helpedibuprofen· HelpedCBD· HelpedL-Theanine· Helpedantivirals for shingles· Helpedpropranolol / beta blockers· No changeamitriptyline· No changefluvoxamine· No changesauna· Worseaspirin· WorseB multivitamin· Not saidfish liver/omega-3· Not saidvitamin D· Not saidvitamin C· Not saidNAC· Not saideye drops· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- dispersible magnesium/potassium/sodium electrolyte supplements · Helped
Only thing I’ve been able to swear by so far is elevating electrolytes (magnesium, potassium, calcium, sodium).
In context ↗ - B multivitamin · Not said
I don’t know what’s been effective and what hasn’t made a difference but something here has been helping me.
In context ↗ - fish liver/omega-3 · Not said
Fish liver/omega-3/vitamin B etc and vitamin D and recently started supplementing my vitamin C.
In context ↗ - vitamin D · Not said
I now only take Vit B/D, L-Theanine and mag/potassium and eye drops.
In context ↗ - vitamin C · Not said
recently started supplementing my vitamin C
In context ↗ - propranolol / beta blockers · No change
I tried a few including propranolol and fluvoxamine and nothing seemed to make any difference even after 2 months of use.
In context ↗ - amitriptyline · No change
I knew from day 1 it was not doing anything for me.
In context ↗ - H1 blockers · Helped
I actually started taking H1 blockers around the same time as the amitriptyline and my symptoms got a lot better a week or so later so I’m not sure which to attribute that improvement to.
In context ↗ - going for walks / spending time outside · Helped
going for walks, spending time outside in general
In context ↗ - reducing phone screen time / sunglasses for light · Helped
Reducing phone screen time was great too
In context ↗ - daily stretches (lymphatic drainage) · Helped
Trying out daily stretches (ones that focus lymphatic drainage) and time in the sun at the moment and that’s been great for stress relief if nothing else.
In context ↗ - time in the sun · Helped
time in the sun at the moment and that’s been great for stress relief
In context ↗ - NAC · Not said
I’ve added NAC to my daily supplements but haven’t been able to tell if it’s helped or not
In context ↗ - sauna · Worse
I tried to use a sauna, it sent my heart rate through the roof, felt dizzy, pounding headache, losing balance and dehydrated in a matter of minutes.
In context ↗ - aspirin · Worse
I took aspirin and felt light headed and dizzy. Never had that kind of reaction before COVID.
In context ↗ - Co-Enzyme Q10 · Helped
Started taking Co-Enzyme Q10 and palpitations are much rarer (maybe time helped this but it’s hard to distinguish).
In context ↗ - beer / alcohol · Helped
the 2-3 days that followed I had zero brain fog and felt like my old self. ... Haven’t experienced that since then though
- pre/probiotics · Helped
Fasting, eating cleaner, avoiding gluten, probiotics regime all helped me clear up for the most part.
In context ↗ - nattokinase · Helped
I also added nattokinase and I haven’t had any headaches since I started taking that. It’s hard to say if it definitely contributed to me feeling better
In context ↗ - fluvoxamine · No change
been on it for 4 weeks now and unfortunately not a noticeable change
In context ↗ - single shot of coffee · Helped
I got some relief from having a single coffee shot early in the morning diluted with hot water
In context ↗ - ibuprofen · Helped
If it’s really bad a quick fix was ibuprofen.
In context ↗ - CBD · Helped
CBD helped with insomnia early on.
In context ↗ - L-Theanine · Helped
I started taking it for brain fog initially but didn’t find any change there. ... the L-Theanine helped prevent caffeine jitters or anxiousness for me
In context ↗ - antivirals for shingles · Helped
Yes I got shingles a month after covid. Went on antivirals and cleared up over the next week or two
In context ↗ - rest · Helped
keeping track of what you eat, plenty of rest, all helped me
In context ↗ - time · Helped
Symptoms seemed to get better with time ... things gradually getting less debilitating after about the year mark
- COVID vaccination as treatment · Not said
I had one anxious day with more muscle spasms followed by great day 0 symptoms.
In context ↗
Approaches: H1 antihistamines · POTS medication · Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Feb/March 2021 | Long COVID symptoms beganLC symptoms started kicking in Feb/March 2021 with panic/anxiety, nausea, blurry vision, brain fog etc etc and went on to decline from there for the rest of the year.In context ↗ | Mild | |
| spring 2021 | Worst neuro symptoms and derealisationAt my worst I definitely knew how the guy in the article was feeling and had extreme derealisation/dissociation where I felt like a spectator in my own body just looking at myself decline.In context ↗ | Mild | |
| June 2021 | Symptoms improved but alternating brain fog, headache and anxietyEventually things got better after 1.5 months. However, I now deal with seemingly alternating symptoms.In context ↗ | Mild | Time and spontaneous remission |
| November 2021 | Reached a stable state, still not pre-COVIDManaged to reach a stable state Nov 2021 and have been living at that state since then.In context ↗ | Mild | Time and spontaneous remission |
| June 2022 | Peak recovery, 80-95%, residual brain fog and visual fogI’d say I’m at the peak of my recovery now.In context ↗ | Near normal | Time and spontaneous remission |
| March 2023 | Considered recovered, occasional brain fog after overworkmost days I feel fully recovered. I’ll notice some brain fog if I overwork myself and spend too much time on screens.In context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“I had one anxious day with more muscle spasms followed by great day 0 symptoms.” In context ↗ Side effects
- Aspirin“I took aspirin and felt light headed and dizzy.” In context ↗ Side effects
- Fluvoxamine (Luvox)“started getting headache and head pressure as a side effect” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityPOTS & dysautonomiaSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Brain fog
I’ll notice some brain fog if I overwork myself and spend too much time on screens.
In context ↗ - Headaches & migraine
headache towards the end of a mentally exhausting day (way less common now)
In context ↗ - Light & noise sensitivity
I had severe light sensitivity and dizziness.
In context ↗ - Heart symptoms & palpitations
heart palpitations and muscle spasms
In context ↗ - Anxiety & low mood
random, uncharacteristic panic attacks
In context ↗ - Sleep problems
sleep anxiety/insomnia
In context ↗ - Vision problems
visual fog (most days)
In context ↗ - Temperature regulation
my heat tolerance is a lot worse than it used to be
In context ↗ - Gut problems
nausea/brain fog kicks off when eating certain foods
In context ↗
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