Long COVID with heart-rate swings, somewhat better after inhaler and small exercise
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Oct 2023
In their words
- Condition: Long COVID
a lot of people on here deal with post-exertional malaise. This was hard for me because you may not feel tired during or directly after your workout
In context ↗ - Now: Somewhat better
This helped me over a long course of time but it was a lot of trial and error.
In context ↗
Summary
They described long COVID with heart-rate swings on standing (50s–60s seated, 90s upright) and what seemed like lung inflammation. A steroid inhaler started a couple months before July 2021 gradually helped until poor air quality set them back. By October 2023 they said starting with a very small amount of exercise and working up, while allowing for exhaustion that could come a day or two later, had helped over a long course of time after much trial and error.
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What they tried
What they credit
Also tried
Their words about each treatment
- steroid inhaler · Helped
I started with a steroid inhaler a couple months ago, which gradually helped, at least until the air quality dropped over the past couple weeks.
In context ↗ - exercise · Helped
This helped me over a long course of time but it was a lot of trial and error.
In context ↗
Approaches: Physiotherapy and rehab
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID with heart-rate swings on standing and lung inflammationI sit down, it's in the 50s or 60s, I stand up and it's immediately in the 90s.In context ↗ | Not stated | |
| 2021-07-25 | steroid inhaler gradually helpedI started with a steroid inhaler a couple months ago, which gradually helpedIn context ↗ | Not stated | |
| July 2021 | symptoms returned after air quality droppedat least until the air quality dropped over the past couple weeksIn context ↗ | Not stated | |
| 2023-10-15 | gradual increases in exercise helped over a long course of timeThis helped me over a long course of time but it was a lot of trial and error.In context ↗ | Mild | Graded rehab and self-made programmes |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I sit down, it's in the 50s or 60s, I stand up and it's immediately in the 90s.
In context ↗ - Post-exertional malaise
you may not feel tired during or directly after your workout, but you might get exhausted the next day or a couple days later
In context ↗ - Breathlessness
Seems like it's somehow related to lung inflammation for me?
In context ↗
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