Couch-bound with long COVID, now about 95% of baseline after rehab and compression
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- May 2024
In their words
- Condition: Long COVID
Chest burning pain and tightness is my new symptom since having long covid for 6 months
In context ↗ - At worst: Severe
Couldn’t get off my couch for months. Didn’t want to live like that.
In context ↗ - Now: Near normal
im 95 percent back to baseline
In context ↗ - Began after: COVID
I was given Paxlovid my second covid infection in may 22 and it made me feel worse and LC started immediately following.
In context ↗
Read from 25 of their posts and comments; links to the 11 this page draws on
Summary
A golfer, she recovered from COVID in January 2021, but a December 2021 booster and a second infection in May 2022, worsened by Paxlovid, brought long COVID. Couch-bound for months with chest pain, a standing heart rate of 135, brain fog and heat intolerance, she was diagnosed with POTS. A customised aerobic and strength rehab programme, compression and sodium brought her to about 95% of baseline by May 2024, with gut symptoms and dizziness left.
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What they tried
What they credit
Also tried
Their words about each treatment
- Bactrim · Much worse
I ended up in ER after being prescribed Bactrim for a UTI!
In context ↗ - cipro · Worse
I too add cipro along with all sulfa antibiotics as my allergy list.
In context ↗ - inhaler · Helped
the doc put me on an inhaler b/c I have seasonal allergies and he said this could be a post viral asthma… it has helped
In context ↗ - compression socks/leggings; hydration with added sodium; head of bed raised · Helped
Those all have helped me ... not dramatically but better than without.
In context ↗ - LDN · Not said
She got me off LDN and mestinon. No drugs currently.
In context ↗ - personalized POTS exercise rehab program (riseabovepots PT) · Helped a lot
I found a physical therapist that was able to help treat and get my pots in remission through a customized aerobic and strength training, rehab program
In context ↗ - Dr Sabine Hazan gut health protocol · Helped a lot
It has been working wonders for me… anxiety has disappeared.
In context ↗ - COVID vaccination as treatment · Not said
I had bad reaction to my covid third shot in dec ‘21… never putting mrna in my body ever again.
In context ↗
Approaches: POTS medication · Physiotherapy and rehab
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 17 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| May 2022 | second COVID infection, Paxlovid, long COVID beganI was given Paxlovid my second covid infection in may 22 and it made me feel worse and LC started immediately following.In context ↗ | Not stated | |
| 2022 | couch-bound for months, competitive golf sidelinedCouldn’t get off my couch for months.In context ↗ | Severe | |
| October 2023 | able to walk an hour a day, still limitedhave not been able to do much more than walk an hour a dayIn context ↗ | Mild | |
| April 2024 | POTS diagnosed; POTS rehab programmeI am hitting just over 2 years and 85% better once i got better diagnosis of POTs.In context ↗ | Mild | Graded rehab and self-made programmes |
| May 2024 | 95% back to baselineBut yeah im 95 percent back to baseline.In context ↗ | Near normal |
Adverse events
- Trimethoprim-sulfamethoxazole (Bactrim)“I ended up in ER after being prescribed Bactrim for a UTI! ... Ended up in ICU because I was so neutropenic” In context ↗ Hospitalisation
- Trimethoprim-sulfamethoxazole (Bactrim)“Ended up in ICU because I was so neutropenic…. Like 200 count” In context ↗ Blood count problems
- Ciprofloxacin (Cipro)“I too add cipro along with all sulfa antibiotics as my allergy list.” In context ↗ Allergic reaction / anaphylaxis
- Trimethoprim-sulfamethoxazole (Bactrim)“I was so apathetic during my course of bactrim …. Like didnt care if I was dying if that makes any sense.” In context ↗ Mood or psychiatric effects
- “I was given Paxlovid my second covid infection in may 22 and it made me feel worse and LC started immediately following.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I had bad reaction to my covid third shot in dec ‘21… never putting mrna in my body ever again.” In context ↗ Side effects
- Graded rehab and self-made programmes“I definitely felt horrible during the rehab program.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
My HR would go from 70 to 135 in less than 2 mins from lying down/sitting to standing up.
In context ↗ - Heart symptoms & palpitations
Chest discomfort was worst symptom.
In context ↗ - Brain fog
fatigue, brain fog, chest pain/discomfort, dizziness all gone
In context ↗ - Breathlessness
shortness of breath etc etc all were my symptoms and all are gone
In context ↗ - Anxiety & low mood
I had two weeks of dissociative feelings and terrible anxiety for quite awhile….. all gone now.
In context ↗ - Temperature regulation
Heat intolerance was terrible
In context ↗ - Gut problems
my gastro symptoms still not fully recovered
In context ↗
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