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Long COVID Mild → near normalIll 6 months before improving or writing

Long COVID symptoms back worse after a run, nearly back to normal after walking and yoga

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
6 months
Last post
Nov 2020
In their words
  • Condition: Long COVIDIt was about two months into recovery that I started having "COVID toes", started to notice more hand and foot numbness In context ↗
  • At worst: MildI spent a few days literally working from my bed laying down, trying to limit the time I was on my feet In context ↗
  • Now: Near normalit took me 5.5 months to really feel more or less back to how I felt. Some things (like hand numbness randomly in the middle of the night) are still not where I would like them to be In context ↗
  • Began after: COVIDcoming down with COVID symptoms April 1
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A 30-year-old man fell ill with COVID-19 in April 2020, seemed almost recovered within a week, but a short run on 26 April brought his symptoms back worse, with further setbacks including palpitations, COVID toes and numbness. He built up walking from two minutes a day, added yoga and strength work, ate better, and by mid-September was running again. After 5.5 months he felt more or less back to normal, though night-time numbness remained.

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Asking aboutStone 57161’s story

What they tried

Their words about each treatment
  • resting in bed and limiting time on my feet · Not saidI spent a few days literally working from my bed laying down, trying to limit the time I was on my feet In context ↗
  • heart rate monitor · Not saidthroughout the day to take my vitals and monitor heart palpitations and my generally high heart rate In context ↗
  • gradually increasing walking and low cardio exercise · Helped a lotSo I walked 2 mins one day and gradually built every day by a few minutes at a time. ... small sessions of yoga after I could walk 10 mins straight, then pushups, squats, etc. In context ↗
  • multivitamin · HelpedI started taking a multivitamin and eating a lot better In context ↗

Approaches: Physiotherapy and rehab · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2020-04-01COVID-19 onset with breathlessness, fever and severe tirednesscoming down with COVID symptoms April 1. Experienced SOB, fever for a couple days with incredible tiredness initially. In context ↗Mild
2020-04-26previous symptoms returned worse after a short run, oxygen around 90I woke up again with all of my previous symptoms but worse. In context ↗Mild
about two months into recoveryCOVID toes and hand and foot numbness; a few days working from bedI spent a few days literally working from my bed laying down, trying to limit the time I was on my feet In context ↗Mild
—started walking two minutes a day and built up slowlyI walked 2 mins one day and gradually built every day by a few minutes at a time. In context ↗MildGraded rehab and self-made programmes
mid-September 2020walking progressed to slow running; feeling more or less back to normalI transitioned walking into running (again at a slower pace) by mid-September. In context ↗Near normalGraded rehab and self-made programmes
2020-11-16not constrained by COVID, night-time hand numbness remainsoverall I don't feel constrained by COVID anymore In context ↗Near normal

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI had several relapses after feeling (relatively) well and pushing myself too far. In context ↗
  • BreathlessnessExperienced SOB, fever for a couple days with incredible tiredness initially. In context ↗
  • Flu-like symptomsfever for a couple days with incredible tiredness In context ↗
  • Neuropathy & tinglingSome things (like hand numbness randomly in the middle of the night) are still not where I would like them to be In context ↗
  • Heart symptoms & palpitationsmonitor heart palpitations and my generally high heart rate In context ↗

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