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Long COVID Mild → somewhat betterIll 10 months before improving or writing

Long COVID twitching, palpitations; somewhat better with magnesium and electrolyte walks

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
10 months
Last post
Jan 2023
In their words
  • Condition: Long COVIDI am 35M. 7 months into LC. In context ↗
  • At worst: MildI made it a point to walk a little everyday and drink lots of electrolytes In context ↗
  • Now: Somewhat betterMy main issue was and still is insomnia ... Trazadone ..barely works.
  • Began after: COVIDI've had full body twitches since covid 3 months ago In context ↗
Read from 21 of their posts and comments; links to the 15 this page draws on

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Summary

Bluebell 48321, a 35-year-old man, fell ill with long COVID in early 2022, with full-body twitching, palpitations on exertion or heavy carb meals, mild POTS and persistent insomnia. Magnesium seemed to calm the twitching, and daily walks with electrolytes brought his POTS heart-rate spikes down after four to five months. Insomnia kept going: mirtazapine gave him restless legs and palpitations, and trazodone barely helped.

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What they tried

Their words about each treatment
  • magnesium · HelpedIt calmed down..partly by talking magnesium I think In context ↗
  • gabapentin · No changeTried gabapentin, melatonin, magnesium ... Nothing helped In context ↗
  • daily sunlight exposure · HelpedBetter than winter that's for sure In context ↗
  • walking a little everyday · HelpedI made it a point to walk a little everyday and drink lots of electrolytes In context ↗
  • gatorade 0 / electrolytes · Helpedlots of gatorade 0 and walks helped In context ↗
  • mirtazapine · WorseTaking 7.5mg for sleep. I find palpitations start 10 mins after taking it. Last for a few mins In context ↗
  • L-tryptophan · Not saidI am already taking L-tryptophan in the am..unsure if it is helping..probably not In context ↗
  • trazadone · HelpedI am taking trazadone now. It's helping a bit. Not much ..barely but it's keeping me functional In context ↗

Approaches: POTS medication · Exercise and activity

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022-03long COVID after covid: full-body twitching, palpitations, mild POTSI've had full body twitches since covid 3 months ago In context ↗Mild
2022-10-11POTS calmed, heart rate no longer spiking on walksIt improved after 4 to 5 months. I made it a point to walk a little everyday and drink lots of electrolytes In context ↗MildSalt, electrolytes and fluids
2022-10-22insomnia worsened, waking at 3amFrom last 2 months cannot sleep..wake up at 3 am In context ↗Mild
2023-01-15still sleeping badly on trazodoneTrazadone ..barely works. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsI get palpitations pretty regularly. In context ↗
  • POTS & dysautonomiaBefore it would easily go to 135 on walks and stuff..now it doesn't In context ↗
  • Sleep problemsFrom last 2 months cannot sleep..wake up at 3 am In context ↗
  • Neuropathy & tinglingI've had full body twitches since covid 3 months ago In context ↗
  • Pain & fibromyalgiaI had the same exact thing. Went to a dentist too and he didn't find anything. In context ↗
  • Anxiety & low moodI stopped checking my resting heart rate coz it gives me anxiety lol In context ↗

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