ME/CFS
Mild → no benefitIll for 30 years
ME/CFS fatigue nearly 30 years, no improvement, still unrefreshed after 10-12 hours
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 30 years
- Last post
- Mar 2024
In their words
- Condition: ME/CFS
my symptoms mimic type 2 narcolepsy, maybe a seratonin deficiency, maybe CFS or potentially depression
In context ↗ - At worst: Mild
I’m tired and spending all my energy trying to stay awake
In context ↗ - Now: No benefit
all these issues have gotten worse the past year
In context ↗ - Began after: nothing they could name
I’ve had fatigue pretty much all my life but it’s been even worse, even when I was a child.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Sparrow 90462 posted in r/cfs in March 2024 that fatigue had been present nearly all their life, nearly 30 years, and had worsened over the past year. They slept 10 to 12 hours without waking refreshed, had memory problems they compared to dementia, and felt anxious doing almost anything, with a racing heart. Waking gasping for air and sleep paralysis had stopped about a year earlier.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- Caffeine · No change
Caffeine doesn’t help but to keep me awake enough so that I don’t sleep.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| childhood | Fatigue present from childhood onwardI’ve had fatigue pretty much all my lifeIn context ↗ | Not stated |
| 2024-03-10 | Fatigue, memory and sleep worsened over the past yearall these issues have gotten worse the past yearIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I never wake up refreshed and even I can never just naturally wake up and go.
In context ↗ - Brain fog
My memory got to a level that I’d compare to someone with dementia
In context ↗ - Anxiety & low mood
I get a lot of anxiety doing just about anything
In context ↗ - Heart symptoms & palpitations
Racing heart, sweating, flushed face, increase blood pressure
In context ↗ - Breathlessness
I would wake up gasping
In context ↗