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Long COVID Moderate → relapsedIll 8 months before improving or writing

Long COVID dizziness and insomnia; a month better after Pfizer, relapse, fluoxetine helped

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
8 months
Last post
Feb 2022
In their words
  • Condition: Long COVIDI'm still struggling with long Covid In context ↗
  • At worst: ModerateI sat down in them as I didn't have the energy to stand In context ↗
  • Now: Relapsedabout a week after my second Pfizer vaccine I started feeling a lot better. Unfortunately it only lasted about a month before the long Covid started coming back In context ↗
  • Began after: COVIDI've only just recovered from Covid (positive test 4 weeks ago) In context ↗
Read from 8 of their posts and comments; links to the 7 this page draws on

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Summary

A Reddit user developed long COVID after a positive test in June 2021, with dizziness, aches and insomnia so bad they put frozen socks on before bed; they had severe sinus headaches during the infection. A first Pfizer dose made them feel terrible; a second brought a month of feeling better before long COVID returned. They credited fluoxetine 30 mg with feeling more positive, less anxious and slightly more energetic, though still struggling in February 2022.

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What they tried

Their words about each treatment
  • super strict healthy eating thing (no salt) · WorseI assumed salt is bad so I eliminated it completely from my diet In context ↗
  • a pinch of salt in my water · HelpedI struggled so I ended up adding a pinch to my water In context ↗
  • cold (frozen socks at night, frozen veg on the head) · HelpedIt's the only way to get any sleep ... I used frozen veg wrapped in a couple of pillow cases
  • painkillers · No changeI had really bad sinus headache too and no painkillers seemed to help In context ↗
  • chewing gum · HelpedAlso chewing gum helped relieve some sinus pressure and also helped with feeling sick. In context ↗
  • long steamy shower · Not saidAnd long steamy shower but I sat down in them as I didn't have the energy to stand. In context ↗
  • stopping the food I was intolerant to · Helped a lotTurns out I'm severely intolerant to a certain type of food. Once I stopped eating it I was fine. In context ↗
  • Pfizer vaccine · Helpedabout a week after my second Pfizer vaccine I started feeling a lot better. Unfortunately it only lasted about a month In context ↗
  • fluoxetine · Helpedafter just 2 months, I feel completely different on it. More positive. A little more energy too! Less anxious. In context ↗

Approaches: SSRIs · Diet · Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
June 2021COVID-19 infection followed by long COVID symptomsI've only just recovered from Covid (positive test 4 weeks ago) In context ↗Moderate
2021-07-08very poor sleep, needing frozen socks in bed; suffering badlyI've resorted to put a clean pair of socks in the freezer in the morning so I can put them on before bed. It's the only way to get any sleep. In context ↗Moderate
late October 2021felt terrible after first Pfizer doseI had my first dose of Pfizer a week ago and it's made me feel terrible In context ↗Moderate
December 2021started feeling a lot better about a week after second Pfizer doseabout a week after my second Pfizer vaccine I started feeling a lot better In context ↗MildCOVID vaccination as treatment
January 2022more positive, less anxious and a little more energy on fluoxetineafter just 2 months, I feel completely different on it. More positive. A little more energy too! Less anxious. In context ↗MildFluoxetine (Prozac)
2022-02-24long COVID came back after about a month of feeling betterUnfortunately it only lasted about a month before the long Covid started coming back In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsIt's the only way to get any sleep. In context ↗
  • Headaches & migraineI had really bad sinus headache too and no painkillers seemed to help. In context ↗
  • POTS & dysautonomiasimilar to what I'm getting now with the long Covid In context ↗
  • Pain & fibromyalgiareally bad tiredness and aches In context ↗
  • Anxiety & low moodMore positive. A little more energy too! Less anxious. In context ↗
  • Gut problemsI struggled with IBS for years. In context ↗

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