Bedridden with long COVID, now much better after psychiatric admission
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Dec 2024
In their words
- Condition: Long COVID
I have been long hauling for 6 months now.
In context ↗ - At worst: Severe
have been bed ridden for the past couple of months. I only walk to the bathroom
In context ↗ - Now: Much better
The psych facility gave me medication that cleared up my long Covid symptoms. Now I’m just left with debilitating anxiety and SIBO.
In context ↗ - Began after: COVID
I got long Covid before I took the nclex.
Read from 20 of their posts and comments; links to the 13 this page draws on
Summary
Long COVID began for Tern 71434 in January 2023, at 24, with subacute thyroiditis and disabling chest pain, then POTS, MCAS and histamine intolerance; by March she was bedridden. A psychiatric admission in April 2023 cleared the long COVID symptoms but left anxiety and SIBO; she later reported poor concentration. She used a low-histamine diet and hydroxyzine for sleep, and in late 2024 said she had left and was happier.
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What they tried
What they credit
Also tried
Their words about each treatment
- colchicine · Helped
Yes colchicine has been keeping my symptoms at the bay
In context ↗ - ibuprofen · Not said
I tried to treat it with colchicine and ibuprofen.
In context ↗ - not eating salt · Helped
did have vertigo and ear ringing/fullness problem but went away as I don’t eat salt anymore
In context ↗ - Zyrtec · Helped
Zyrtec helps a lot with palpitations and the reaction
In context ↗ - medication from the psych facility · Helped a lot
The psych facility gave me medication that cleared up my long Covid symptoms.
In context ↗ - sodium oxybate · Not said
I have narcolepsy and I had to give my sleep medication which was sodium oxybate.
In context ↗ - Low histamine diet · Helped
Low histamine diet
In context ↗ - hydroxyzine · Helped
I responded well to hydroxyzine 50mg. I was able to get sleep on this medication but it does have its side effects like sleepiness.
In context ↗ - SSRIs · No change
I didn’t respond to SSRIs.
In context ↗ - anti psychotics like risperdone · Worse
Tried some anti psychotics like risperdone and I got some dystonia or even tardive dyskinesia from them.
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2023 | subacute thyroiditis and disabling chest pain beganI started having subacute thyroiditis on January 4 or 5th. I started having chest pain.In context ↗ | Moderate |
| January 18, 2023 | palpitations, high heart rates, MCAS and histamine intolerance addedThen on January 18th, I started to have palpitations, high heart rates, MCAS, histamine intolerance.In context ↗ | Moderate |
| March 2023 | bedridden, only walking to the bathroomhave been bed ridden for the past couple of months. I only walk to the bathroomIn context ↗ | Severe |
| April 2023 | psych facility medication cleared long Covid symptoms, leaving anxiety and SIBOThe psych facility gave me medication that cleared up my long Covid symptoms.In context ↗ | Moderate |
| December 2024 | left an abusive home, much happier; still troubled by histamine intoleranceI left, I’m a lot happierIn context ↗ | Not stated |
Adverse events
- Colchicine“I was treating myself with colchicine for possible pericarditis/Costo and did experience nausea, vomiting, dizziness, and diarrhea.” In context ↗ Side effects
- “i retained the contrast and it made my long covid worse” In context ↗ Made symptoms worse
- “after my cmri I got bumps. I would smell gandolinium in my urine and nostrils. It also messed up my throat.” In context ↗ Side effects
- “Tried some anti psychotics like risperdone and I got some dystonia or even tardive dyskinesia from them.” In context ↗ Side effects
- “Stay away with protein drinks with artificial sweeteners it literally gave me SIBO.” In context ↗ Gut side effects
- “I took medicine that had artificial sweetener and since then I have been waking up with high levels of anxiety it lasts throughout the day. I can’t concentrate and I have impending doom” In context ↗ Mood or psychiatric effects
- Hydroxyzine (Atarax, Vistaril)“I responded well to hydroxyzine 50mg. I was able to get sleep on this medication but it does have its side effects like sleepiness.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I exerted myself as my family was trying to take the keys away from me. After that incident, I have been sleeping a lot.
In context ↗ - Brain fog
I can’t concentrate and I have impending doom
In context ↗ - POTS & dysautonomia
POTS with adrenaline dumps
In context ↗ - Mast cell (MCAS) & allergies
MCAS, histamine intolerance
In context ↗ - Sleep problems
constant fatigue and sleeping for 14 hours a day
In context ↗ - Gut problems
Now I’m just left with debilitating anxiety and SIBO.
In context ↗ - Breathlessness
I also have left shoulder pain, SOB, exercise intolerance
In context ↗ - Heart symptoms & palpitations
Every time I walk I feel palpitations and sometimes they occur at rest.
In context ↗ - Muscle weakness
I was depressed so I haven’t been eating that much and been feel weak and dizzy.
In context ↗ - Tinnitus
did have vertigo and ear ringing/fullness problem but went away as I don’t eat salt anymore
In context ↗
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