Long COVID
No benefitIll for 4 years
Long COVID with brain fog, PEM and head pressure, no relief from treatments tried
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- 4 years
- Last post
- Nov 2025
In their words
- Condition: Long COVID
I have neuro long covid
In context ↗ - Now: No benefit
I need to figure out as it’s been going on for 4 years now
In context ↗ - Began after: COVID
For me all started with long covid
In context ↗ - Says they never had: Gut problems
But I never had GI symptoms with histamine foods.
Read from 13 of their posts and comments; links to the 11 this page draws on
Summary
Sequoia 45197 has had long COVID since about 2021, with burning head pressure, brain fog, PEM, anxiety, insomnia and severe inflammation of one nasal passage. Antihistamines gave no relief, and an antidepressant didn't help their sexual symptoms; acupuncture flared symptoms, antibiotics for suspected Lyme made things much worse, and home EAT therapy caused heavy nosebleeds. A 24-hour fast sent their nervous system "crazy". They remained ill.
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What they tried
Also tried
Their words about each treatment
- antibiotics · Worse
currently taking antibiotics for these which makes it soo much worse
In context ↗ - acupuncture · Worse
Acupuncture-one session has flared my symptoms- more fight or fight, anxiety, insomnia both are back.
In context ↗ - antidepressant · No change
Even tried an antidepressant hoping they will come back but they didn’t.
In context ↗ - NAC nasal spray · Not said
I have ordered the NAC nasal spray and whenever I spray it to my left nasal passages it is burning so much
In context ↗ - EAT therapy at home · Helped
Makes things flare after but overall helps.
In context ↗ - H1 antihistamines · No change
I don’t really feel any relief after taking H1, H2 antihistamines.
In context ↗ - low histamine diet · Not said
Should I still stick to low histamine diet?
In context ↗ - amitriptyline · No change
I was taking it yes but didn’t help me overall.
In context ↗ - fasting · Worse
I tried fasting and my symptoms go crazy.
In context ↗ - Cromolyn nasal spray · Not said
I tried everything, Cromolyn nasal spray, steroid nasal spray.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2021 | long COVID beganFor me all started with long covidIn context ↗ |
| before April 2024 | stressful event brought numbness and loss of sexual feelingafter a crazy stressful event something went off in my brain and I have lost sexual interest, numb down there and no pleasure orgasmsIn context ↗ |
| 2024-12-16 | one acupuncture session flared anxiety, insomnia and electric brain sensationsAcupuncture-one session has flared my symptoms- more fight or fight, anxiety, insomnia both are back. Electric brain sensations are back tooIn context ↗ |
| 2025-04-08 | some sexual interest returned though numbness stayedLately I have experienced sexual interest- like I am horny lol but my genital is still mostly numb to touchesIn context ↗ |
| 2025-11-30 | still ill, tried nasal sprays without reliefSame! I tried everything, Cromolyn nasal spray, steroid nasal spray.In context ↗ |
Adverse events
- Antibiotics (unspecified)“currently taking antibiotics for these which makes it soo much worse..” In context ↗ Made symptoms worse
- Acupuncture“Acupuncture-one session has flared my symptoms- more fight or fight, anxiety, insomnia both are back. Electric brain sensations are back too..” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“whenever I spray it to my left nasal passages it is burning so much even my tears rolling down my face” In context ↗ Side effects
- “For me the area it’s extremely painful when rubbing it so much mucus comes out even blood. Makes things flare after but overall helps.” In context ↗ Made symptoms worse
- “While I was doing it I had big pain and then severe nose bleeding- like blood was coming and dripping from my nasal passage.” In context ↗ Side effects
- Intermittent fasting“I tried fasting and my symptoms go crazy. Like my nervous system is freaking out without food. ... I tried it for 24 hours. I have neuro long covid” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogHeadaches & migraineMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPost-exertional malaiseSleep problems
Their words about their symptoms
- Headaches & migraine
head pressure, burning head pressure that turns into a migraine type of terrible headache
In context ↗ - Post-exertional malaise
PEM, tremors, anxiety, weakness like jelly legs
In context ↗ - Anxiety & low mood
anxiety, insomnia both are back
In context ↗ - Sleep problems
more fight or fight, anxiety, insomnia both are back
In context ↗ - Muscle weakness
weakness like jelly legs
In context ↗ - Neuropathy & tingling
Electric brain sensations are back too
In context ↗ - Mast cell (MCAS) & allergies
I have experienced red flushing skin- face, chest-from red wine
In context ↗