ME/CFS
Moderate → somewhat better
Housebound with ME/CFS, somewhat better after diet changes and choline
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2018
In their words
- Condition: ME/CFS
I have a mild/moderate case of CFS
In context ↗ - At worst: Moderate
I'm not bed ridden but homebound, I can do things in the house without major problems
In context ↗ - Now: Somewhat better
I did get a bit better in certain regards over the last year but I honestly doubt I will ever completely recover from this.
In context ↗
Summary
Prairie 29198 had a mild/moderate case of CFS by late 2017: not bedridden but housebound, with insomnia, sensitivity to light, noise, smells and foods, and pain. Brain fog and stuttering almost disappeared after cutting sugar and refined carbs, identifying food allergies and taking choline. By mid-2018 they still felt terrible after eating, with fatigue and joint and muscle pain, though better at night.
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What they tried
Also tried
Their words about each treatment
- detoxing heavy metals · Helped
since addressing these three issues - heavy metals, limiting sugar and refined carbs and finding out my food allergies
In context ↗ - limiting sugar and refined carbs · Helped
limiting sugar and refined carbs
In context ↗ - finding out my food allergies · Helped
finding out my food allergies
In context ↗ - choline · Helped
choline was the most helpful for me
In context ↗ - B12 · Helped
B12, B3 and vit A help me a bit but also cause other side effects.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2017-11-29 | housebound with mild/moderate CFS, insomnia and light, noise, smell and food sensitivitiesI have a mild/moderate case of CFS, I'm not bed ridden but homebound, I can do things in the house without major problemsIn context ↗ | Moderate |
| 2017-12-04 | brain fog and stuttering almost gone after cutting sugar and refined carbs, finding food allergies and taking supplements including cholinesince addressing these three issues - heavy metals, limiting sugar and refined carbs and finding out my food allergies along with taking some supplementsIn context ↗ | Moderate |
| 2018-07-22 | still feels terrible after eating; better at nightyes, I feel terrible after eating. Fatigue, joint and muscle pain, mood swings and other neurological issuesIn context ↗ | Moderate |
Adverse events
- Vitamin B12, Niacin (vitamin B3), Vitamin A (retinol)“B12, B3 and vit A help me a bit but also cause other side effects.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
my main issues are with insomnia
In context ↗ - Light & noise sensitivity
sensitivity to light, noise, smells, foods
In context ↗ - Mast cell (MCAS) & allergies
finding out my food allergies
In context ↗ - Brain fog
I used to have bad brain fog and would stutter sometimes when speaking
In context ↗ - Pain & fibromyalgia
Fatigue, joint and muscle pain, mood swings and other neurological issues
In context ↗