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Long COVID Moderate → much betterIll 4 months before improving or writing

Long COVID fatigue and brain fog, unable to work, much better after vaccine and pacing

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
4 months
Last post
Jul 2022
In their words
  • Condition: Long COVIDI got covid in dec2021. Started LC symptoms in two weeks. In context ↗
  • At worst: ModerateI had worst month of march with severe headaches, fatigue, brain fog, tinnitus, GI and palpitations ... still can’t work. Can watch tv and chat with my family. In context ↗
  • Now: Much betterStill not 100% but 80% recovered ... No more headaches
  • Began after: COVIDI got covid in dec2021. Started LC symptoms in two weeks. In context ↗
Read from 26 of their posts and comments; links to the 12 this page draws on

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Summary

Starling 66076 caught COVID in December 2021 and had long COVID symptoms about two weeks later: fatigue, brain fog, tinnitus, headaches, insomnia, nausea, anxiety and palpitations. March 2022, after PEM, was their worst month. They credit the Pfizer vaccine in April 2022, supplements and pacing with steady improvement. In April 2022 they still could not work, and in May they were about 80% recovered but fatigue and brain fog remained; by July 2022 the headaches had gone.

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What they tried

Their words about each treatment
  • Steam · HelpedSteam and get 8hrs sleep. It helped me In context ↗
  • 8hrs sleep · HelpedI take vitamins and 8 hrs sleep every night In context ↗
  • pacing · HelpedI paced and it went with time. In context ↗
  • D3 · HelpedI had been taking D3, probiotics, one a day, fish oil omega3, b12, b2, b3 and magnesium. In context ↗
  • magnesium · HelpedI think magnesium before bed helps too. In context ↗
  • melatonin · HelpedI take magnesium and melatonin 10mg for sleep. In context ↗
  • pfizer · Helped a lotI think the vaccine and supplements helped me. In context ↗
  • hydroxyzine · Helpedi had hydroxyzine 50mg for a week In context ↗
  • meditation · HelpedI meditate before sleep and just believe your natural power to sleep In context ↗
  • positive thinking · Helpedpositive mind is helping me i feel my muscles heal and stronger day by day In context ↗
  • Short walk in Sun · HelpedShort walk in Sun. And stay positive helps. In context ↗
  • Tylenol · Not saidI tried taking steam and tylenol if severe. In context ↗

Approaches: Brain retraining · Pacing · Supplements · Vaccination

Their path

Very severeSevereModerateMildNear normalRecovered3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
December 2021caught COVID, long COVID symptoms began two weeks laterI got covid in dec2021. Started LC symptoms in two weeks. In context ↗Not stated
March 2022worst month, after PEMmarch was the worest month after PEM. In context ↗Moderate
April 2022improved after first Pfizer dose, vitamins and sleepStill not 100% but 80% recovered. In context ↗MildCOVID vaccination as treatment
May 2022feeling like themselves again, still no workI am in 5th month. Feel like myself again. Wants some more energy and brain fog improvement. In context ↗Mild
July 2022headaches gone, at the beach, still recoveringI was at a beach yesterday. No more headaches 🙏🏻🙏🏻😇😇. It took 4-6 months to go. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisemarch was the worest month after PEM. In context ↗
  • Brain fogFatigue and brain fog still there but improving In context ↗
  • Headaches & migraineNo more headaches In context ↗
  • Tinnitussevere headaches, fatigue, brain fog, tinnitus, GI and palpitations In context ↗
  • Sleep problemsMy insomnia recovered in 3 months. In context ↗
  • Gut problemsI had worst month of march with severe headaches, fatigue, brain fog, tinnitus, GI and palpitations. In context ↗
  • Anxiety & low moodI felt like crying all the time. I was hopeless and fearful. In context ↗
  • Pain & fibromyalgianausea and insomnia and muscle pains almost 99% gone In context ↗

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