Largely bedbound with long COVID, now much better after LDN and other drugs
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 14 months
- Last post
- Mar 2024
In their words
- Condition: Long COVID
I had COVID in jan 2023 and long COVID ever since.
In context ↗ - At worst: Severe
when I couldn't get out of bed
In context ↗ - Now: Much better
I didn't feel 100% but still better than a few months ago when I couldn't get out of bed.
In context ↗ - Began after: COVID
I had COVID in jan 2023 and long COVID ever since
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Ocean 64205 developed long COVID after a COVID infection in January 2023, with brain fog and tiredness, and recovered to about 95% after an iron infusion that year. A suspected reinfection in Vietnam in December 2023 left them dizzy and faint and largely bedbound, worse than ever. After a month on LDN, fluvoxamine and steroids they returned to their original self, though later they still did not feel 100% out with friends.
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What they tried
What they credit
Also tried
Their words about each treatment
- iron infusion · Helped a lot
Last year when my symptoms started the doctors associated it with low iron and I got an infusion. My symptoms were quite mild after and eventually I was 95% recovered
In context ↗ - amoxycillin · Not said
Took amoxycillin and it's been over 10 days now and still extremely dizzy
In context ↗ - anti depressants · Helped
I've started anti depressants because it was all a bit too much to handle. Definitely has helped with feeling more positive
In context ↗ - fluvoxamine · Helped a lot
Started LDN, fluvoxamine and steroids about a month ago ... But 30 days later. Back to my original self, no brain fog or dizziness.
In context ↗ - Fasting · Helped
Fasting/LDN/Supplements/ rest / anti inflammatory. Try them all
In context ↗
Approaches: SSRIs · Other drugs and medicines · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| January 2023 | COVID infection followed by long COVIDI had COVID in jan 2023 and long COVID ever since. Brain fog and tiredness were my biggest symptomsIn context ↗ | |
| 2023 | recovered to about 95% after iron infusionMy symptoms were quite mild after and eventually I was 95% recoveredIn context ↗ | Iron infusion / ferritin repletion |
| December 2023 | fell ill in Vietnam with dizziness, worse than evergot sick while in Vietnam in December and it's been worse it's ever beenIn context ↗ | |
| 2024-03-10 | back to original self on FLCCC protocolBut 30 days later. Back to my original self, no brain fog or dizziness.In context ↗ | Low-dose naltrexone |
| 2024-03-24 | out for brunch with friends, not 100%I went for brunch today after ages with my friends. I didn't feel 100% but still better than a few months ago when I couldn't get out of bedIn context ↗ |
Adverse events
- Low-dose naltrexone“Started LDN, fluvoxamine and steroids about a month ago ( flccc protocol) Worst month of my life- depressed dizzy fatigue faintish” In context ↗ Made symptoms worse
- Fluvoxamine (Luvox)“Started LDN, fluvoxamine and steroids about a month ago ( flccc protocol) Worst month of my life- depressed dizzy fatigue faintish” In context ↗ Made symptoms worse
- Corticosteroid pulses“Started LDN, fluvoxamine and steroids about a month ago ( flccc protocol) Worst month of my life- depressed dizzy fatigue faintish” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
Brain fog and tiredness were my biggest symptoms
In context ↗ - POTS & dysautonomia
still extremely dizzy and fainitish
In context ↗ - Anxiety & low mood
I've started anti depressants because it was all a bit too much to handle
In context ↗
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