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ME/CFS Outcome unclear

Fatigue, fibromyalgia pain and anxiety with ME/CFS, trying lycopene and medical marijuana

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Mar 2015
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Kestrel 79352 posted in r/cfs in March 2015 about fatigue, fibromyalgia pain, anxiety and depression. They had taken lycopene for years, advising starting at 10–20 mg and working up to 40 mg; at 60 mg it greatly reduced fatigue but worsened fibromyalgia. Small amounts of medical marijuana every few days kept pain at bay and tempered anxiety and depression. Recent painful pins and needles had occurred before but seemed worse after about a month on L-Methionine.

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What they tried

Also tried

lycopene· HelpedMedical MJ· HelpedL-Methionine· WorsePS· Not said
Their words about each treatment
  • lycopene · HelpedAt 60mg my fibromyalgia kicked up but it greatly reduced the fatigue In context ↗
  • Medical MJ · HelpedA small amount ever few days keeps the pain at bay and tempers my anxiety and depression. In context ↗
  • L-Methionine · WorseI did have some of those issues before I started the L-Methionine, but seemed to get worse after a month or so of starting it. In context ↗
  • PS · Not saidI am taking L-Methionine and PS so it might be part of the methylation protocol you are taking In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
unknownME/CFS onset; trigger and date not statedI react much more strongly to it than I did before I got sick but that was a long time ago. In context ↗
2015-03-10fatigue greatly reduced after taking lycopene for yearsit greatly reduced the fatigue In context ↗
2015-03-10pins and needles worsened after starting L-Methionine and PSI did have some of those issues before I started the L-Methionine, but seemed to get worse after a month or so of starting it. In context ↗
2015-03-10pain and mood symptoms controlled by medical marijuana; still reports painful pins and needlesA small amount ever few days keeps the pain at bay and tempers my anxiety and depression. In context ↗

Adverse events

  • “At 60mg my fibromyalgia kicked up” In context ↗ Made symptoms worse
  • “it also gave me more of a immune response and in the beginning kicked up some low level infections” In context ↗ Other
  • Other amino acids“I did have some of those issues before I started the L-Methionine, but seemed to get worse after a month or so of starting it.” In context ↗ Nerve pain

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaAt 60mg my fibromyalgia kicked up In context ↗
  • Neuropathy & tinglingI've recently been getting an all over pins and needles kind of thing. In context ↗
  • Anxiety & low moodtempers my anxiety and depression In context ↗

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