Long COVID
Moderate → no benefitIll for 2.5 years
Long COVID fatigue and dizziness, days in bed, no improvement after antidepressants
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 2.5 years
- Last post
- Feb 2024
In their words
- Condition: Long COVID
My official diagnosis was: Long Covid+EBV and never fully recovered because of major depressive disorder.
In context ↗ - At worst: Moderate
but my chronic fatigue can be so bad some days I can't get out of bed
In context ↗ - Now: No benefit
Every day it seems I stray further and further from who I was and my hope is fading fast.
In context ↗ - Began after: COVID
symptoms of long covid which I believe is the cause of the kickstart of this illness for me
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Bluebell 16557, 23, was a fit rock climber until COVID in October 2021; suspected reinfections left her with years of fatigue unrelieved by rest, post-exertional malaise, dizziness and syncope, and some days she could not get out of bed. A sit-down job helped, zinc and vitamin C helped a lot, and stimulants eased symptoms. Eight antidepressants failed, one triggering a suicide attempt; a hot tub worked wonders.
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What they tried
Also tried
Their words about each treatment
- Antidepressants · Worse
Antidepressants made my condition worse.
In context ↗ - zinc · Helped a lot
I currently take zinc and vitamin c supplements which have helped tremendously but it's not enough.
In context ↗ - Stimulants · Helped
Stimulants helped my symptoms significantly but still struggled with my circadian rhythm.
In context ↗ - hot tub · Helped a lot
Closest i could get to a sauna is a hot tub. My in laws have one and they let me use it. ... works.....wonders......
In context ↗ - Escitalopram (Lexapro) · Worse
escitalopram for 2 months. caused me to attempt self homicide
In context ↗ - Citalopram (Celexa) · Not said
citalopram for less than a month with awful side effects, and nothing to show for it.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 8 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| Oct. 2021 | got COVID, first illnessGot sick the first time in Oct. 2021In context ↗ | Not stated |
| June 2022 | two-week non-COVID illness, suspected EBVIn June 22, I got very sick for two weeks, was tested for covid and it wasn't covidIn context ↗ | Moderate |
| 2023-12-13 | changed to a sit-down job and felt betterI had changed jobs to a sit down and I feel better, but my chronic fatigue can be so bad some days I can't get out of bedIn context ↗ | Mild |
| 2024-02-27 | still fighting to get out of bed after repeated infectionsthe world keeps going as i fight just to get out of bedIn context ↗ | Moderate |
Adverse events
- Antidepressants (unspecified)“Antidepressants made my condition worse.” In context ↗ Made symptoms worse
- Escitalopram (Lexapro)“escitalopram for 2 months. caused me to attempt self homicide” In context ↗ Suicidal thoughts or attempt
- Citalopram (Celexa)“citalopram for less than a month with awful side effects, and nothing to show for it.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessFlu-like symptomsPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
post excertional malaise
In context ↗ - POTS & dysautonomia
dizziness, syncope
In context ↗ - Breathlessness
extreme fatigue and malaise, dyspnea, dizziness, syncope
In context ↗ - Flu-like symptoms
chronic sore throat, intermittent fever
In context ↗ - Sleep problems
isnt relieved by sleeping or resting even for weeks
In context ↗ - Anxiety & low mood
never fully recovered because of major depressive disorder
In context ↗