ME/CFS
Severe → recovered
Severe and housebound with ME/CFS, now in full ME remission
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
Confirmed my diagnosis at the end of the call
In context ↗ - At worst: Severe
I've moved from severe and housebound to mild MCAS and AD symptoms but full ME remission (i.e. less fatigued, no PEM, cognitive improvements)
In context ↗ - Now: Recovered
full ME remission (i.e. less fatigued, no PEM, cognitive improvements)
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
A UK user who had been severe and housebound with ME/CFS reported full ME remission by September 2026, with less fatigue, no PEM and cognitive gains, though mild MCAS and autonomic symptoms remained. For a year they slept upright in a chair with a footstool because lying flat caused gut problems and leg pain. A Bristol NHS ME clinic appointment in December 2025 confirmed the diagnosis and encouraged sleep and pain management.
Ask Miruvor AI
What they tried
Also tried
sleeping in a chair with a foot stool· HelpedBristol ME clinic session· Not saidreducing white point and color filters· Not said
Their words about each treatment
- Bristol ME clinic session · Not said
Had my session with the Bristol ME clinic last week (Dec 2025).
In context ↗ - reducing white point and color filters · Not said
reducing white point and color filters can help. for me, all my Apple devices I have adjusted these settings to 85-95 sort of range.
In context ↗ - sleeping in a chair with a foot stool · Helped
Sleeping reduces all of those symptoms to a manageable level, but I end up with bad arm and hand pain.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | Severe and housebound with ME/CFSI've moved from severe and housebound to mild MCAS and AD symptoms but full ME remissionIn context ↗ |
| 2026-09-01 | Full ME remission; mild MCAS and autonomic symptoms remainfull ME remission (i.e. less fatigued, no PEM, cognitive improvements)In context ↗ |
Symptoms mentioned
Brain fogGut problemsLight & noise sensitivityMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Brain fog
cognitive improvements
In context ↗ - POTS & dysautonomia
I would say my POTS like symptoms are minimal but do occur now and again.
In context ↗ - Mast cell (MCAS) & allergies
Gastro issues seem more linked to MCAS.
In context ↗ - Pain & fibromyalgia
I wake with severe leg pain
In context ↗ - Gut problems
Lying down horizontally gives me bad gastrointestinal issues
In context ↗ - Light & noise sensitivity
for me, all my Apple devices I have adjusted these settings to 85-95 sort of range
In context ↗