ME/CFS with nausea and suicidal thoughts, somewhat better with pacing and Wellbutrin
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Feb 2019
In their words
- Condition: ME/CFS
With cfs that has only made my life worst.
In context ↗ - At worst: Moderate
it is also a social outlet I can have without having to leave my house ... my time in bed much more enjoyable
- Now: Somewhat better
Things got a lot better for me when I eventually was able to be more in tune with how I was feeling
In context ↗
Read from 14 of their posts and comments; links to the 8 this page draws on
Summary
A person said it took them three or four years to learn that pushing through symptoms only made things worse, and that pacing made things a lot better. Wellbutrin, taken for a couple of years at 300 mg after a couple of dose tries, lifted their mental fatigue and depression, while wrong doses made everything worse. They eventually stopped being suicidal, though nausea persisted almost constantly and anything beyond walking cost too much energy.
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What they tried
What they credit
Their words about each treatment
- being more in tune with how I was feeling · Helped
Things got a lot better for me when I eventually was able to be more in tune with how I was feeling and letting how I was feeling control what I do
In context ↗ - wellbutrin · Helped
I have had good results in fighting my mental fatigue and depression with welbutrin.
In context ↗ - therapy / psychologist · Helped
With a focus, seeing a psychologist, and some hard work I eventually stopped being suicidal and never looked back.
In context ↗ - weighted blanket · Helped
Get her a weighted blanket. It has made my sleep incredible and my time in bed much more enjoyable.
In context ↗ - walking · Helped
The success I have found so far is in walking. Anything more costs too much energy for the benefit.
In context ↗ - beer · Helped
I am nauseous almost 24/7 and after a beer or two that goes away and makes me feel better.
In context ↗
Approaches: CBT & mindset · Exercise and activity · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | CFS onset; used to push through symptomsI grew up working hard and pushing through the pain. With cfs that has only made my life worst.In context ↗ | Not stated | |
| 2018-03-12 | medication dose change made everything else worseI am recently going through a dosage change right now and it is the worst.In context ↗ | Moderate | |
| 2018-03-17 | learned to pace instead of pushing throughThings got a lot better for me when I eventually was able to be more in tune with how I was feelingIn context ↗ | Mild | Pacing and the energy envelope |
| 2018-05-14 | right antidepressant dose lifted mental fatigue and depressionThe right dosage makes me feel more like me.In context ↗ | Mild | Bupropion (Wellbutrin) |
| 2019-02-13 | no longer suicidal; still nauseous almost constantlyI eventually stopped being suicidal and never looked back.In context ↗ | Mild |
Adverse events
- Bupropion (Wellbutrin)“I have had good results in fighting my mental fatigue and depression with welbutrin. It took me a couple tries to find the right dosage though. The wrong dosage made everything worst.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
I have had good results in fighting my mental fatigue and depression with welbutrin.
In context ↗ - Gut problems
I am nauseous almost 24/7
In context ↗ - Anxiety & low mood
my psychologist has advised that I play as much as I would like to help with my depression
In context ↗ - Sleep problems
It has made my sleep incredible
In context ↗ - Pain & fibromyalgia
I grew up working hard and pushing through the pain.
In context ↗
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