ME/CFS: hardly able to do anything at worst, now much better and mild
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Jan 2025
In their words
- Condition: ME/CFS
I've been dealing with what I heavily think is cfs
In context ↗ - At worst: Severe
I could hardly do anything. Living alone I had to drag myself on the floor if I wanted to do anything
In context ↗ - Now: Much better
I crashed really hard at first and somehow recovered to the point that I'm fairly mild now. Still not mild enough to live a normal life
In context ↗ - Began after: stress or burnout
I pushed through tons of things and the stress plus a whole lot of factors ended up with me getting sick
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
Hare 69088 was 17, working as an aircraft mechanic, when they collapsed from exhaustion and had to quit; at first they could hardly do anything and had to drag themselves on the floor to get food. They improved over the next year to a mild level: they can paint or play games for about two hours but need the rest of the day to recover. By early 2025 they were still only fairly mild, unable to work or study, and pacing to avoid crashing again.
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What they tried
What they credit
Also tried
Their words about each treatment
- stimulants · Not said
I'm already on stimulants.
In context ↗ - antidepressants · No change
That and antidepressants which according to my doctor should give me energy... which it obviously dosen't.
In context ↗ - rest · No change
I wouldn't say rest helps a lot. The main thing it does is make me stop and not making the symptoms worse.
In context ↗ - pacing · Helped
I've made my own pacing which allows me to rest and do a few things.
In context ↗ - vitamins · No change
I know everyone wanted to cure me with them but I didnt see a significant difference.
In context ↗ - sunlight · Helped
Maybe its only placebo but sunlight does give a little something.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | collapsed at work as an aircraft mechanic after months of pushing through stress and physical labourI used to do aircraft mechanics when i basically just collapsed. That was a year ago. At first I could hardly do anything. Living alone I had to drag myself on the floor if I wanted to do anything.In context ↗ | Severe |
| 2023-11 | improved to mild over the first year, able to do things for about two hours before needing the afternoon to recoverNow, a year after the initial crash I am doing somewhat better. ... I can get out of bed and have a daily routine and do things I love (although for a max of 2 hrs 3 if I push it) then usually requires the whole afternoon to recover.In context ↗ | Mild |
| 2023-12 | crashed after overdoing itif I overdo it. Which I did not too long ago. Things will get worse. And a lot worse too.In context ↗ | Not stated |
| 2025-01 | fairly mild but still not able to live a normal lifesomehow recovered to the point that I'm fairly mild now. Still not mild enough to live a normal lifeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
My brain is soup and headaches and pain are day to day things.
In context ↗ - Headaches & migraine
headaches and pain are day to day things
In context ↗ - Muscle weakness
I still feel fatigued and heavy
In context ↗ - Post-exertional malaise
then usually requires the whole afternoon to recover
In context ↗ - Anxiety & low mood
I had a depression for a while
In context ↗
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