Long COVID
No benefitIll for 5 years
Long COVID with nerve pain, low mood and brain fog; LDN, TMS and ketamine no benefit
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- 5 years
- Last post
- May 2025
In their words
- Condition: Long COVID
Increased my LC symptoms the longer I was on it.
In context ↗ - Now: No benefit
I’ve tried just about everything else and I’ve found no benefit.
In context ↗ - Began after: COVID
Trying to treat the nerve pain from Covid.
In context ↗
Read from 18 of their posts and comments; links to the 14 this page draws on
Summary
Ill with long COVID for about five years, with nerve pain probably from small fibre neuropathy, low mood and brain fog. LDN from a supplier whose pills lab-tested as fake, TMS, ketamine infusions and Paxlovid gave no benefit; one treatment increased symptoms the longer they were on it, and NSAIDs and IV Toradol made them worse. Benadryl and cognitive therapy helped.
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What they tried
Also tried
5 hour energies· HelpedCocaine· Helpedcognitive therapy· HelpedBenadryl· HelpedCT contrast· HelpedLDN· No changePemgarda· No changeDaratumumab· No changeTMS· No changeketamine· No changePaxlovid· WorseNSAIDs· Worse
Their words about each treatment
- 5 hour energies · Helped
5 hour energies keep me sane
In context ↗ - LDN · No change
I got LDN and from there and they were filling pills with baby aspiri instead of LDN. Became suspicious when I had no effect.
In context ↗ - Pemgarda · No change
Never worked for me
In context ↗ - Daratumumab · No change
I tried it not effective
In context ↗ - Paxlovid · Worse
Increased my LC symptoms the longer I was on it.
In context ↗ - Cocaine · Helped
Cocaine keeps me sane. Really helps with motivation or if I’m feeling a little down.
In context ↗ - cognitive therapy · Helped
I recommend cognitive therapy. It has been a game changer for me.
In context ↗ - TMS · No change
TMS for like 32 treatments. Just made me sleepy after each session. No benefits.
In context ↗ - ketamine · No change
Also, did ketamine many times in last 5 years. ... I’ve found no benefit.
In context ↗ - NSAIDs · Worse
NSAIDS flare me up like a balloon ... they gave me Tordol by iv and I started screaming.
- Benadryl · Helped
Benadryl takes away many Long Covid symptoms. I highly recommend.
In context ↗ - CT contrast · Helped
No actually alleviated my brainfog and improved mood.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | onset of long COVID with nerve painTrying to treat the nerve pain from Covid.In context ↗ |
| 2025-05-23 | long COVID symptoms increased the longer they stayed on PaxlovidIncreased my LC symptoms the longer I was on it.In context ↗ |
| 2025-05-23 | CT contrast alleviated brain fog and improved moodNo actually alleviated my brainfog and improved mood.In context ↗ |
Adverse events
- rTMS (transcranial magnetic stimulation)“Just made me sleepy after each session.” In context ↗ Side effects
- NSAIDs (unspecified)“NSAIDS flare me up like a balloon” In context ↗ Autoimmune or inflammatory flare
- NSAIDs (unspecified)“Right after I went to ER and they gave me Tordol by iv and I started screaming.” In context ↗ Side effects
- Paxlovid / nirmatrelvir“No, made Covid much worse for me.” In context ↗ Made symptoms worse
- Paxlovid / nirmatrelvir“Increased my LC symptoms the longer I was on it.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
No actually alleviated my brainfog and improved mood.
In context ↗ - Neuropathy & tingling
Trying to treat the nerve pain from Covid. Most likely have small fiber neuropath.
In context ↗ - Anxiety & low mood
Really helps with motivation or if I’m feeling a little down.
In context ↗