ME/CFS with dizziness, brain fog and palpitations, much better with supplements and LDN
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 20 months
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
I developed chronic fatigue syndrome after 6 hour tummy tuck surgery in late 2024.
In context ↗ - At worst: Moderate
After getting back to NZ, I barely got any better, still felt so dizzy all the time & all other symptoms.
In context ↗ - Now: Much better
I got much better but I still get flares up every once in a while.
In context ↗ - Began after: injury or surgery
I developed chronic fatigue syndrome after 6 hour tummy tuck surgery in late 2024.
In context ↗
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
They developed CFS after a six-hour tummy tuck in late 2024, with constant dizziness, breathlessness, brain fog, nausea, gland swelling and palpitations that twice put them in hospital; tests in New Zealand found nothing. They credit a large supplement regimen with recovering from flares far faster, and later added low-dose naltrexone, a psychologist and more rest. They are back at the gym on good days but still flare every two to three weeks.
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What they tried
What they credit
Also tried
Their words about each treatment
- L-carnitine supplement · Helped
I take 1 capsule L-carnitine a day & D-brose powder in water twice a day. I reckon it helps me heaps.
In context ↗ - D-brose powder · Helped
D-brose powder in water twice a day. I reckon it helps me heaps.
In context ↗ - supplements · Helped
But I am also taking many other supplements. I find they have helped me a lot. They didn't cure it but I recover from symptoms a lot faster.
In context ↗ - Vitamin C · Helped
others like C, Iron, B, D, K2+D3 (I pick these and take them every second or third day) just to keep it up
In context ↗ - perimenopause supplement · Helped
Now I am taking perimenopause supplement, and others like C, Iron, B, D, K2+D3
In context ↗ - creatine · Helped
creatine, extra protein, gut health powder(every day)
In context ↗ - compression socks, compression sleeves · Helped
Compression socks, compression sleeves really help when your legs feel like jelly. Compression also helps with body inflammation.
In context ↗ - hot bean bag · Helped
Put it on the inflamed part, it really helps.
In context ↗ - avoiding triggers and resting · Helped
I kinda know how to stop myself from getting flares up because I know what trigger my symptoms, so I avoid them
In context ↗ - vinegar · Helped
It's the sour tangy taste that seems to help with me feeling sick & trying to keep the food down.
In context ↗ - seeing a phycologist · Helped
I looked at the root cause & I think I needed to regulate my nervous system. So, I started seeing a phycologist.
In context ↗ - resting more · Helped
I am resting more, thinking less about making money( I own a little lash salon). I am giving myself some grace.
In context ↗ - LDN(low dose naltrexone) · Helped
I started taking LDN a month ago & I think it helps me, not a cure but it helps.
In context ↗
Approaches: CBT & mindset · Amino acids and carnitine · Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| late 2024 | CFS began after a 6-hour tummy tuckI developed chronic fatigue syndrome after 6 hour tummy tuck surgery in late 2024.In context ↗ | Moderate | |
| after returning to NZ | no improvement back in New Zealand; constant dizziness and all other symptomsAfter getting back to NZ, I barely got any better, still felt so dizzy all the time & all other symptoms.In context ↗ | Moderate | |
| 2026-06 | supplements; recovers from flares much fasterBut I am also taking many other supplements. I find they have helped me a lot. They didn't cure it but I recover from symptoms a lot faster.In context ↗ | Mild | |
| — | flare-up after an hour-long phone call with a friendI got dizzy from talking on the phone with a friend, giggling, laughing for an hour. Then, boom!! I got flare up.In context ↗ | Mild | |
| 2026-08-23 | added LDN, a psychologist, more rest and less work pressure; back at the gym on good daysI am back at the gym but I can't lift as heavy as I used to.In context ↗ | Mild | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still get flares up though maybe once every 2-3 weeks
In context ↗ - Brain fog
exhausted, brain fog, nauseous
In context ↗ - POTS & dysautonomia
I felt dizzy all the time
In context ↗ - Heart symptoms & palpitations
my heartbeat skips every now & then but it wasn't dangerous
In context ↗ - Breathlessness
I had difficulty breathing
In context ↗ - Gut problems
I couldn't swallow food properly
In context ↗ - Flu-like symptoms
the right side gland swelling like flu symptom
In context ↗ - Muscle weakness
my muscles got so weak because of it
In context ↗
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