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Long COVID Mild → somewhat betterIll 3 years before improving or writing

Long COVID breathlessness, palpitations, brain fog, somewhat better on keto and melatonin

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
3 years
Last post
Jan 2024
In their words
  • Condition: Long COVIDHad random breathlessness attacks and heart palps all the way up til thanksgiving. Still get tired quick if I overdo it In context ↗
  • At worst: MildIt seems to be "stuck" at its current level of severity, which seems like it might be mild in comparison to a lot of folks here. In context ↗
  • Now: Somewhat betterthought i was in the clear but ive been having some sleep/brain issues lately that are similar to my first infection in 2020. In context ↗
  • Began after: COVID10/8. Had all the typical flu-like symptoms for about 3 days.
Read from 15 of their posts and comments; links to the 13 this page draws on

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Summary

Tundra 34017 caught COVID in October 2020 and was left with breathlessness attacks and heart palpitations for weeks, then constant tinnitus, vivid dreams, brain fog and getting tired easily. A ketogenic diet and lemon-balm melatonin seemed to ease some symptoms, but sleep and thinking problems came back after a third infection in March 2023. Tinnitus was still present in early 2024.

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What they tried

What they credit

Also tried

melatonin· Helpedlemon balm· Helpedketogenic diet· Helpedcut sodium and at least a gallon of water a day· HelpedZyrtec· HelpedBenadryl· HelpedAllegra· Helpedweed (indica vape, cannabutter)· Worseinhaler· Not said
Their words about each treatment
  • weed (indica vape, cannabutter) · WorseWeed makes my newfound tinnitus way worse. In context ↗
  • inhaler · Not saidhavent used the inhaler since last thursday In context ↗
  • melatonin · HelpedI had decent results during my first run with covid with lemon balm infused melatonin. In context ↗
  • ketogenic diet · Helpedand now that you mention it, I does seem like I feel a bit better. havent used the inhaler since last thursday In context ↗
  • potassium · Helpedas soon as i tested positive, I increased potassium, and cut sodium for the first 5 days In context ↗
  • cut sodium and at least a gallon of water a day · Helpedcut sodium for the first 5 days. drank at least a gallon of water a day on top of that In context ↗
  • Zyrtec · HelpedZyrtec has always put me down faster than benadryl ever did. In context ↗
  • Allegra · HelpedAllegra seemed to help a little bit during the day when i first started noticing some brain fogginess. In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2020-10-08COVID-19 with flu-like symptoms; lost taste and smell10/8. Had all the typical flu-like symptoms for about 3 days. Lost taste and smell for 24 hours. Slept it off. In context ↗Mild
November 2020breathlessness attacks and heart palpitations, then neuro symptomsHad random breathlessness attacks and heart palps all the way up til thanksgiving. In context ↗Mild
2020-12-03keto diet; stopped needing the inhalerI just decided to go keto again ... I does seem like I feel a bit better. havent used the inhaler since last thursday In context ↗MildKeto and low-carb diets
2020-12-14vivid dreams slowed after melatonin with lemon balmSlowed down when I found 10 mg melatonin infused with lemon balm. In context ↗Mild
2021-01-09breathing better, still tires quickly on overdoing itStill get tired quick if I overdo it, but the breathing seems to have gotten better. In context ↗Mild
2023-04-04third infection kept mild, no lingering problems at firstit seemed to keep it mild, and i havent had to deal with the 2nd wave this time. No lingering problems to date. In context ↗Mild
2023-05-09sleep and brain issues returned after the third infectionthought i was in the clear but ive been having some sleep/brain issues lately that are similar to my first infection in 2020. In context ↗Mild
2024-01-12suspected undetected fourth round; tinnitus persistsi suspect we all just got over an undetected 4th round because my ears are still ringing, but the tests all came back negative In context ↗Mild

Adverse events

  • “It seemed to trigger/make certain symptoms worse, regardless of whether I ate or smoked it.” In context ↗ Made symptoms worse
  • “Weed makes my newfound tinnitus way worse.” In context ↗ Made symptoms worse
  • “When I was symptomatic, it seemed to trigger chest tightness/a warm sensation in my chest/SOB..regardless of how it was ingested.” In context ↗ Made symptoms worse
  • “it only seems to happen with weed, not alcohol or caffeine.” In context ↗ Mood or psychiatric effects
  • Keto and low-carb diets“the first time i ever experienced ringing in both of my ears-and- for a period of longer than 10 seconds WAS the first time i tried to do the ketogenic diet.” In context ↗ Side effects
  • “Had to go to the bathroom every 45 minutes but it seemed to keep it mild” In context ↗ Side effects
  • Cetirizine (Zyrtec)“Zyrtec can cause drowsiness in some people. ... Im one of them.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Brain fogI find myself forgetting what I was doing more often than before. In context ↗
  • Sleep problemsive been having some sleep/brain issues lately that are similar to my first infection in 2020. In context ↗
  • Tinnitusmy ears are still ringing In context ↗
  • BreathlessnessHad random breathlessness attacks and heart palps all the way up til thanksgiving. In context ↗
  • Loss of smell or tasteLost taste and smell for 24 hours. In context ↗
  • Flu-like symptomsHad all the typical flu-like symptoms for about 3 days. In context ↗
  • Anxiety & low moodbest i got is sleep anxiety but that doesnt quite cover it. In context ↗

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