ME/CFS
Severe → no benefitIll for 2 years
Rarely leaving home with ME/CFS fatigue and brain fog, iron and B12 no help
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 2 years
- Last post
- May 2024
In their words
- At worst: Severe
i stay in bed roughly 10 hours a day, the only thing I manage to do is game at my PC.
In context ↗ - Now: No benefit
It’s been going on 2 years now and I’m getting worse
In context ↗
Summary
Ridge 18143 had been ill for about two years with worsening fatigue, dizziness, weak legs, sleep problems and brain fog, still without a diagnosis while awaiting sleep apnea tests. They rarely left home, spent about 10 hours a day in bed and managed only limited gaming. After a DJ event with drinking and hours standing, they had a panic attack and felt much worse the next day. Iron infusion and B12 supplements did nothing.
Ask Miruvor AI
What they tried
Their words about each treatment
- iron infusion · No change
my iron and b12 are low but having an iron infusion did nothing
In context ↗ - b12 supplements · No change
b12 supplements didn’t either
In context ↗ - coffee / caffeine · Worse
Caffeine doesn’t help ... Coffee makes me feel worse
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | illness beganIt’s been going on 2 years nowIn context ↗ | Moderate |
| 2024-05-25 | getting worse, mostly in bedI’m getting worse i stay in bed roughly 10 hours a day, the only thing I manage to do is game at my PCIn context ↗ | Moderate |
| 2024-05-27 | crashed after DJ event and drinkingtoday I feel like i’ve been hit by a trainIn context ↗ | Severe |
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsMuscle weaknessPOTS & dysautonomiaPost-exertional malaiseSleep problemsVision problems
Their words about their symptoms
- Post-exertional malaise
stood up for a few hours ... today I feel like i’ve been hit by a train
In context ↗ - Brain fog
brain fog, blurry eyes, no focus
In context ↗ - POTS & dysautonomia
constant dizziness ... feeling like i was going to pass out
- Gut problems
no appetite, random vomiting when stressed ... nauseous
In context ↗ - Sleep problems
Insomnia but when i do sleep it’s 9 hours of broken sleep
In context ↗ - Breathlessness
Breathless, tight chest
In context ↗ - Muscle weakness
Shaky/weak legs and hips constantly ... my legs feel like stiff cardboard
- Anxiety & low mood
Major anxiety and depression ... had a panic attack