ME/CFS
Moderate → no benefit
Years of ME/CFS fatigue, brain fog and pain, still limited despite meditation and Ativan
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2023
In their words
- Condition: ME/CFS
I already have chronic fatigue syndrome and I have sleep apnea on top of that
In context ↗ - At worst: Moderate
I can't even work a normal job so I'm always scraping bills ... At some point, it will get debilitating to the point where I'm going to have to lay back down and close my eyes.
- Now: No benefit
I still wake up every morning with the same s*** ... I wake up after a few hours of sleep and my body is in pain.
Read from 15 of their posts and comments; links to the 8 this page draws on
Summary
Moon 26033 developed a chronic fatiguing illness in their late 20s and described years of fatigue, brain fog, unrefreshing sleep and pain, with sleep apnea. CPAP and BiPAP did not help and they could not tolerate them. Meditation sometimes cleared their brain fog for hours and Ativan occasionally eased pain and sleep, but they remained limited by pain, poor sleep and fatigue through 2023; they also had Lyme disease and minor diverticulitis.
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What they tried
Also tried
yoga nidra / meditation· HelpedAtivan· HelpedCPAP and BiPAP· Worseweed· Worsemouthpiece· Not saidchiropractor and massage· Not saidexercise with VR headset· Not said
Their words about each treatment
- CPAP and BiPAP · Worse
pap therapy was a miserable failure that actually sent me to the brink of going nut bar for a while
In context ↗ - mouthpiece · Not said
trying to mouthpiece that I never could get used to
In context ↗ - yoga nidra / meditation · Helped
Now I use meditation to both fall asleep at night AND during the day when I wake up and have fatigue I do it and it will literally snap me out of my chronic fatigue symptoms.
In context ↗ - Ativan · Helped
Sometimes after an Ativan the pain seems to go and I can relax on almost anything and sleep.
In context ↗ - weed · Worse
Weed is kind of one of the things that puts me in a bad place for a long time.
In context ↗ - chiropractor and massage · Not said
I'll go to a chiropractor and within a couple to a few months I must must must go get a hardcore massage.
In context ↗ - exercise with VR headset · Not said
yesterday was the first day in a while that I did a little exercise and thank God I have myself a virtual reality headset
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| late 20s | developed illness in late 20sI probably developed this illness in my late 20s.In context ↗ | Not stated | |
| 2019-10-22 | debilitating fatigue and brain fogAt some point, it will get debilitating to the point where I'm going to have to lay back down and close my eyes.In context ↗ | Moderate | |
| 2019-10-23 | meditation temporarily cleared fatigue and brain fogI do it and it will literally snap me out of my chronic fatigue symptoms.In context ↗ | Moderate | Meditation, yoga, breathwork |
| 2021-10-26 | worsening sleep pattern and fatigue; Lyme diagnosisBut now I'm afraid it's getting worse, I might sleep all night wake up be tired fall asleep for 3 hours wake up still feel tired and then all of a sudden have a burst of energy at night time.In context ↗ | Moderate | |
| 2023-07-19 | ongoing back pain and sleep disruptionI wake up after a few hours of sleep and my body is in pain.In context ↗ | Moderate |
Adverse events
- CPAP and sleep apnoea treatment“pap therapy was a miserable failure that actually sent me to the brink of going nut bar for a while” In context ↗ Made symptoms worse
- CPAP and sleep apnoea treatment“being tortured to death almost by a CPAP or BiPAP machine over the years and still getting fatigue every day, even with great readings” In context ↗ Made symptoms worse
- Lorazepam (Ativan)“Besides the next day I'm in that benzo haze added to my Fatigue normally so...” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
there's just like this persistent tiredness and brain fog
In context ↗ - Sleep problems
I wake up after a few hours of sleep and my body is in pain
In context ↗ - Pain & fibromyalgia
my body is in pain
In context ↗ - Gut problems
I definitely have gut/GI problems, I definitely have inflammation problems, bloating problems.
In context ↗ - Anxiety & low mood
I'm literally desperate to the point of just wanting to give up
In context ↗ - Tinnitus
I to get ringing in my ears
In context ↗