Long COVID: insomnia, numbness and blocked breathing; nearly normal after prayer
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2.5 years
- Last post
- May 2024
In their words
- Condition: Long COVID
I got reduced sensation all over my body from asymptomatic covid or the vax.
In context ↗ - At worst: Mild
Originally I was getting maybe 1-2 hours of extremely light sleep ... I was having trouble doing a semi-brisk walk around the neighborhood
- Now: Near normal
A lot better. Sleeping almost normally. I still have reduced sensation all over my body, maybe it's 10-15% reduced than normal?
In context ↗ - Began after: COVID
I got reduced sensation all over my body from asymptomatic covid or the vax.
In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
Horizon 69628's long COVID began in January 2022 with insomnia, then numbness and near-total nasal congestion that made breathing feel blocked for months. A skin biopsy confirmed small fibre neuropathy. They credited prayer, therapy and family, and reported about 70% recovery by November 2022. By 2024 they slept almost normally and felt back to normal, with some reduced sensation left.
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What they tried
Also tried
Their words about each treatment
- Chanting OM · Helped
I noticed a difference chanting OM for a minute or two at least 4 times a day.
In context ↗ - Prayer · Helped a lot
I broke down one night in prayer when my breathing was really bad and I believe it was either the next day or the day after my congestion was gone and anxiety lifted
In context ↗ - Therapy · Helped
I ended up having to see a therapist who dealt with chronic illness since doctors had no real solutions or answers for me.
In context ↗ - Ceiling fan and small fan at night · Helped
One thing I did was I slept with my ceiling fan on and I also have a small fan on a timer that I point towards my head.
In context ↗ - nicotine patches · Helped
I tried the nictoine patches at a really low dose (i cut the smallest does patch in half) for like a month or so and they seemed to help
In context ↗
Approaches: CBT & mindset · Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2022 | insomnia began first, then numbness spread over the bodyThe insomnia started in Jan 2022 for me.In context ↗ | Mild | |
| early 2022, 2-3 months in | nose numbness and near-total congestion for 2-3 months, breathing focus, 1-2 hours light sleepI was holding on by a thread for the 2-3 months that this thing attacked my nose/breathing.In context ↗ | Mild | |
| 2022-11-05 | about 70% recovered; skin biopsy confirmed small fibre neuropathyI'm feeling about 70% recovered where at my lowest point I was just existing moment to moment.In context ↗ | Mild | |
| January 2024 | covid reinfection knocked them back for two weeksI even got covid this January and it kicked my butt for 2 weeks, but I'm back to feeling normal again.In context ↗ | Mild | |
| 2024-02-06 | sleeping almost normally, no more cold nose, fingers or toesSleeping almost normally. I still have reduced sensation all over my body, maybe it's 10-15% reduced than normal?In context ↗ | Near normal | |
| 2024-05-08 | low-dose nicotine patches seemed to helpI tried the nictoine patches at a really low dose (i cut the smallest does patch in half) for like a month or so and they seemed to helpIn context ↗ | Near normal | Nicotine patches |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
The first symptom I had before any numbness hit was insomnia
In context ↗ - Neuropathy & tingling
I still have reduced sensation all over my body, maybe it's 10-15% reduced than normal?
In context ↗ - Anxiety & low mood
Extreme anxiety that almost felt like it reduced to me a childish state
In context ↗ - Temperature regulation
I no longer get cold nose, fingers, or toes.
In context ↗ - Loss of smell or taste
Numbness in tongue, lessened sense of taste
In context ↗ - Breathlessness
I was focused on my breath 24/7 because I could barely feel any air coming through my nose or sinuses
In context ↗ - POTS & dysautonomia
slight dizziness
In context ↗ - Gut problems
When I would first fall asleep for the night I would gag or have some sort of reflux reaction
In context ↗
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