ME/CFS
Mild → somewhat betterNeeds ongoing treatment
Morning brain fog and palpitations with ME/CFS, somewhat better on thiamine and magnesium
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2024
In their words
- At worst: Mild
I was injecting it every day what I was tent camping in August.
In context ↗ - Now: Somewhat better
I wake up every day feeling shitty. Then, I inject. I feel clearheaded within about an hour.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
A 60-year-old with Lyme and colitis self-injected thiamine with magnesium for palpitations and morning brain fog; their tachycardia improved and they felt clearheaded an hour after injecting, though they still woke feeling unwell. While injecting glutathione daily on a camping trip, they had swollen ankles and a 104 fever; after stopping for months the edema abated, and they now inject twice weekly. NAD+ trigger-point injections by their wife eased their pain for about four hours only.
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What they tried
Also tried
thiamine therapy (Thiamax orally and thiamin hcl injected)· HelpedNAD+ injections into trigger points· Helpedglutathione intramuscular injections· WorsePilates· Worsemagnesium gluconate / magnesium sulfate injections· Not saidboron and molybdenum· Not saidboron and molybdenum· Not saidpowerful herbal cocktail to kill the Lyme· Not said
Their words about each treatment
- thiamine therapy (Thiamax orally and thiamin hcl injected) · Helped
my tachycardia has really improved!
In context ↗ - magnesium gluconate / magnesium sulfate injections · Not said
I now inject magnesium sulfate every morning, along with the thiamin.
In context ↗ - boron and molybdenum · Not said
I also take boron and molybdenum.
In context ↗ - NAD+ injections into trigger points · Helped
I literally kills the pain - for about four hours. It does nothing longer term.
In context ↗ - glutathione intramuscular injections · Worse
So far, I only feel worse when injecting glutathione.
In context ↗ - Pilates · Worse
I started shaking in every session. Not a good look - and very embarrassing. It was the last thing I wanted to do in giving it up.
In context ↗ - powerful herbal cocktail to kill the Lyme · Not said
I was also taking a very powerful herbal cocktail to kill the Lyme.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| before August 2023 | terrible heart palpitations and morning brain fog before thiamineI was having some terrible heart palpitations before I started the thiamine therapy. There were times when my heart rate would spike at 116.In context ↗ | |
| 2023-08-05 | tachycardia improved on thiamine injectionsNow it seldom goes higher than 82. Something seems to be working. ... my tachycardia has really improved! | Thiamine / benfotiamine |
| August 2023 | daily glutathione injections while tent camping; ankles swelled and fever hit 104I was injecting it every day what I was tent camping in August. My ankles blew up like balloons. ... My fever shot up to 104.In context ↗ | |
| 2024-01-06 | clearheaded within an hour of thiamine and magnesium injectionI wake up every day feeling shitty. Then, I inject. I feel clearheaded within about an hour.In context ↗ | Thiamine / benfotiamine |
| 2024-02-14 | still feels worse after glutathione injections, pain from Lyme trigger pointsSo far, I only feel worse when injecting glutathione.In context ↗ |
Adverse events
- Glutathione“My ankles blew up like balloons. ... My fever shot up to 104.” In context ↗ Herx / die-off reaction
Symptoms mentioned
Their words about their symptoms
- Brain fog
I’m still suffering from horrible brain fog when I first wake up.
In context ↗ - Heart symptoms & palpitations
I was having some terrible heart palpitations before I started the thiamine therapy
In context ↗ - Pain & fibromyalgia
It creates horrible trigger points in my lavatory scapula and my rhomboids. The pain is terrible.
In context ↗ - Gut problems
So, I have colitis.
In context ↗