Bedridden 11 months with long COVID, much better after time or Pepcid
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 14 months
- Last post
- May 2023
In their words
- Condition: Long COVID
I have had it for years before long haul and it did get worse with covid.
In context ↗ - At worst: Severe
11 of which I was bedridden with almost no energy or strength
In context ↗ - Now: Much better
I've been back to work for 14 months ... Better now but still nothing like my old self
In context ↗ - Began after: COVID
I probably had it up to three times as.near as i can figure.
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
A man in his early 50s with long COVID was bedridden for 11 months and thought he would die; just before he improved he could not speak for a week. After about 14 months he improved, which he put down to either time or a few days of Pepcid, a probiotic and low-dose prednisone. Memory, brain function and loose stools lingered; by May 2023 he had been back at work 14 months, better but still nothing like his old self.
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What they tried
What they credit
Their words about each treatment
- prednisone · Helped
I found a tiny old prescription (5 MG) and I take it when my brain fog and speech gets bad (as needed, but very sparsely).
In context ↗ - Pepcid / famotidine · Helped
I took a prednisone and pepcid last night.
In context ↗ - a really good probiotic · Helped
right before my improvement I took Pepcid, a really good probiotic, and low dose prednisone for a few days
In context ↗ - prayer · Not said
Lot's of prayer and emotions.
In context ↗ - pushing through physical activity · Not said
continued to push through physical activity until my heart rate got high, then I tested and pushed to continue the activity
In context ↗
Approaches: H2 blockers · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | fell ill with long COVIDI had a fairly "miraculous" recovery after about 14 months, 11 of which I was bedridden with almost no energy or strength.In context ↗ | Not stated |
| 2021 | bedridden for 11 months, thought he would not make itI was bed ridden for 11 months. Thought i wasn't going to make it.In context ↗ | Severe |
| May 2022 | six days barely able to speak or find wordsI had about 6 days where I could barely speak because I couldn't find words, even simply ones.In context ↗ | Not stated |
| 2022 | improved enough to function and return to workIt was either time or right before my improvement I took Pepcid, a really good probiotic, and low dose prednisone for a few days.In context ↗ | Mild |
| 2023-05-03 | back at work, better but not his old selfI've been back to work for 14 months, feeling terrible at first. Better now but still nothing like my old selfIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
That and memory / brain function issues are the lingering systems I am having.
In context ↗ - Gut problems
I am still having loose movements though, for about 10 months now.
In context ↗ - POTS & dysautonomia
I've had vertigo, barely able to stand for a long long time, over two years.
In context ↗ - Heart symptoms & palpitations
I have had this as well (high heart rate after eating) , plus elevated heart rate with physical activity.
In context ↗ - Tinnitus
I have had it for years before long haul and it did get worse with covid.
In context ↗ - Muscle weakness
11 of which I was bedridden with almost no energy or strength
In context ↗
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