Long COVID
Severe → near normalIll 2 years before improving or writingNeeds ongoing treatment
Worst long COVID with POTS and MCAS, now near normal on a carnivore diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
I am in the early LHers group. 2020 March.
In context ↗ - At worst: Severe
back to 80-90% from almost dying
In context ↗ - Now: Near normal
I seem to be able to achieve almost complete remission and be in a very good place if I stick to a stric carnivore diet and take extra ascorbic acid when fasted.
In context ↗ - Began after: COVID
I myself got sick early in March 2020 ... after which I caught it in September 2020 and that triggered numerous visits to hospitals
Read from 44 of their posts and comments; links to the 27 this page draws on
Summary
A man in his 30s developed long COVID in September 2020 after a more severe reinfection, having had a February infection; he called himself one of the worst cases, with POTS, neuropathy, MCAS, dryness and gut problems. Steroids and antibiotics gave temporary relief, and he improved to 80-90% by March 2022. By 2026 he reported near-complete remission on a strict carnivore diet with ascorbic acid, plus famotidine and a PPI for gastritis and MCAS.
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What they tried
What they credit
methylprednisolone· Helped a lot · main · wore offcarnivore diet· Helped a lot · mainomeprazole· Helpedretard potassium· Helpedrosuvastatin· Helpedfamotidine (Quamatel mini)· Helpedmethyl B12 (methylcobalamine)· Helpedmethyl folate· Helpediron chewable tablets· Helpedvitamin C (ascorbic acid)· Helpedvitamin D· Helpednattokinase· Helpedglutathione· Helpedprobiotics (VSL3, S.boulardii)· Helpedsmoking· Helped
Also tried
amoxicillin· Helpedceftriaxone· Helped · wore offmultivitamin for men (BioTechUSA)· Helpedxanax (alprazolam)· Helpeddiazepam· Helpedpregabalin / lyrica· Helpedmesalazine· Helpedmagnesium· No changequercetin· No changeDAO enzymes· No changeNAC· No changeclarithromycin· WorseAdvil (ibuprofen)· WorseCOVID vaccination as treatment· Worsemetronidazole· Not saiddoxycycline· Not saidivermectin· Not saidcalcium· Not saidginkgo· Not saidomega-3· Not saidselenium· Not saidzinc· Not saidCoQ10· Not saidvitamin K1 and K2· Not saidbiotin· Not saidbaby aspirin· Not said
Their words about each treatment
- amoxicillin · Helped
Everything improved and was normal. Was it the antibiotics? I dont know.
In context ↗ - magnesium · No change
Yep, I did try magnesium. Doesnt work
In context ↗ - quercetin · No change
Have been taking it for a long time with DAO enzymes and it hasnt helped.
In context ↗ - DAO enzymes · No change
Also DAO enzymes didnt do much for me
In context ↗ - NAC · No change
I have been taking dao and quercetin , NAC for months…didnt really notice improvements.
In context ↗ - ceftriaxone · Helped
I was getting better but now I am starting to see every symptom come back.
In context ↗ - metronidazole · Not said
cetriaxone intramuscularly 2g + metronidazole 3x400
In context ↗ - doxycycline · Not said
1 weeks of doxy which I had to stop because of thrush being so severe
In context ↗ - methylprednisolone · Helped a lot
After I finally found a doc who was willing to give me methylprednisolone I really improved massively.
In context ↗ - omeprazole · Helped
I was also considering if part of the improvement came from omeprazole
In context ↗ - retard potassium · Helped
potassium less likely but it does help even now, I tried a couple of times
In context ↗ - ivermectin · Not said
I have also been taking ivermectin for some time.
In context ↗ - rosuvastatin · Helped
What has proven to be beneficial for me was low dose statins + famotidine and multivitamins
In context ↗ - famotidine (Quamatel mini) · Helped
It helps for sure. I forgot to take it for 2-3 days when I was quite busy and symptoms started coming back.
In context ↗ - multivitamin for men (BioTechUSA) · Helped
vitamin for men (biotech), methylcobalamine , methyl folate, iron , c vit, d vit( 6000IU) and occasional probiotics have been the most helpful.
In context ↗ - methyl B12 (methylcobalamine) · Helped
I have been taking methyl b12 and methyl folate (due to mthfr homozygous mutation
In context ↗ - methyl folate · Helped
Folate and b12 I take due to MTHFR homozygous mutation
In context ↗ - iron chewable tablets · Helped
iron stores have been depleted
In context ↗ - vitamin C (ascorbic acid) · Helped
take extra ascorbic acid when fasted
In context ↗ - vitamin D · Helped
Daily glutatione, natto and 6k vit D as well.
In context ↗ - probiotics (VSL3, S.boulardii) · Helped
probiotics have been the most helpful.
In context ↗ - calcium · Not said
Every 2nd day iron + vit c, calcium, magnesium, ginko, vit k1 and k2, selenium, zinc.
In context ↗ - omega-3 · Not said
mag, calcium, dao, quercetin, multivit, nac, q10, ginko, omega3
In context ↗ - zinc · Not said
Methyl b12, methyl folate, vit d 6k daily + zinc Q10 and biotin megadose.
In context ↗ - vitamin K1 and K2 · Not said
k1 and k2, calcium , magnesium , quercetin, dao enzymes but they arent part of my daily routine.
In context ↗ - biotin · Not said
zinc Q10 and biotin megadose
In context ↗ - baby aspirin · Not said
Every once in a while I will take a baby aspirin.
In context ↗ - xanax (alprazolam) · Helped
Once I started taking 0.125mg of xanax ( half of the smallest dose) my blood pressure spikes and tachy disappeared.
In context ↗ - diazepam · Helped
Treatments that are used in MS like diazepams miraculously also help.
In context ↗ - pregabalin / lyrica · Helped
Started lyrica today. 0 adverse effects, feeling quite well.
In context ↗ - mesalazine · Helped
If I take mesalazibe it wilk drop to 14.
In context ↗ - clarithromycin · Worse
I have been feeling horrible while on abx and I was ready to accept I miht be back to square 1.
In context ↗ - carnivore diet · Helped a lot
I seem to be able to achieve almost complete remission and be in a very good place if I stick to a stric carnivore diet
In context ↗ - Advil (ibuprofen) · Worse
Advil makes my scalp itch and have nodules
In context ↗ - smoking · Helped
have also improved by starting smoking post viral a decade ago
In context ↗ - COVID vaccination as treatment · Worse
got my 2nd pfizer shot at the end of April 2021. If anything, it made my symptoms worse.
In context ↗
Approaches: H2 blockers · Proton pump inhibitors · Anticoagulants · Diet · Other drugs and medicines · Statins · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| September 2020 | long COVID begins after a second, much more severe COVID infectionA shitload of symptoms and a lot more sever infection this time that triggered everything from A to ZIn context ↗ | Severe | |
| 2021-08-11 | symptoms returned after ceftriaxone and doxycyclineI was getting better but now I am starting to see every symptom come back.In context ↗ | Severe | |
| 2021-12-08 | large improvement on methylprednisoloneI improved greatly almost completely while on methylprednisolone, retard potassium and omeprazole 40mgIn context ↗ | Moderate | Corticosteroid pulses |
| 2021-12-10 | full relapse after catching a common coldHorrible sore throat, headache, full blown relapse.In context ↗ | Severe | |
| 2021-12-10 | one of his best days after the coldI was feeling so great like I havent in 2 years.In context ↗ | Mild | |
| 2022-03-09 | slow but steady improvement, heart settledI am improving , back to 80-90% from almost dying.In context ↗ | Mild | |
| 2023-01-07 | burning skin and urticaria only briefly controlled by prednisoneLow dose prednisone instantly got rid of it but that only worked for a time.In context ↗ | Moderate | |
| 2026-04-28 | near-complete remission on a strict carnivore dietI seem to be able to achieve almost complete remission and be in a very good place if I stick to a stric carnivore diet and take extra ascorbic acid when fasted.In context ↗ | Near normal | |
| 2026-08-24 | gastritis and MCAS symptoms resolved with low-dose PPI and famotidineFixing chronic gastritis and associated mcas symptoms solved it.In context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“got my 2nd pfizer shot at the end of April 2021. If anything, it made my symptoms worse.” In context ↗ Made symptoms worse
- Doxycycline (Vibramycin)“1 weeks of doxy which I had to stop because of thrush being so severe” In context ↗ Side effects
- Clarithromycin (Biaxin)“I have been feeling horrible while on abx” In context ↗ Side effects
- Amoxicillin (Amoxil), Ceftriaxone (Rocephin), Metronidazole (Flagyl), Doxycycline (Vibramycin), Clarithromycin (Biaxin)“The day after stopping abx I have had the worst low and high blood pressure alternating, headache , tachy and feeling like a mess. ... the worst symptom was very serious hypothermia.” In context ↗ Low blood pressure or fainting
- Ibuprofen (Advil, Nurofen, Motrin)“Advil makes my scalp itch and have nodules” In context ↗ Allergic reaction / anaphylaxis
- NAC (N-acetylcysteine)“NAC dries the hell out of my mouth (600)” In context ↗ Side effects
- “they did a lung biopsy and even gave me a pneumothorax” In context ↗ Other
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problemsTemperature regulation
Their words about their symptoms
- Brain fog
After that I would be hit by severe brain fog and blood pooling in upper arms and feet.
In context ↗ - POTS & dysautonomia
The usual POTS, susp. EM,low grade fever, vascular issues
In context ↗ - Mast cell (MCAS) & allergies
typical MCAS but waiting to exclude mastocytosis
In context ↗ - Sleep problems
Its maybe slightly better now with me being able to sleep like 4-5 hours max.
In context ↗ - Pain & fibromyalgia
dull aches around ligaments/joints
In context ↗ - Headaches & migraine
headache , tachy and feeling like a mess
In context ↗ - Gut problems
I have had chronic gastritis show up in the past on gastric biopsies
In context ↗ - Heart symptoms & palpitations
Had crazy tachy , blood pressure spikes for at least 6 months.
In context ↗ - Muscle weakness
Muscles dont really work and ton of fasciculations happen.
In context ↗ - Neuropathy & tingling
neuropathy (calves twitching for months now), red burning feet and toes and upper arms mostly
In context ↗ - Anxiety & low mood
Around the time I had some random panic attacks as well.
In context ↗ - Temperature regulation
But the worst symptom was very serious hypothermia.
In context ↗ - Hair loss
I have lost some of my hair (body as well)
In context ↗
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