Long COVID with vertigo and pain, near normal then crashed; fluvoxamine may have helped
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 15 months
- Last post
- Feb 2023
In their words
- At worst: Moderate
some of the more severe ones like vertigo that flattened me and unequal pupils
In context ↗ - Now: Relapsed
Fourteen months into long haul I went three weeks feeling nearly 100%. ... It took 48 hours for the crash to hit, but now I’m back in bed with extreme fatigue, tinnitus, and nervous system dysfunction.
In context ↗ - Began after: COVID
the virus did take some fun detours to major organs along the way
Read from 9 of their posts and comments; links to the 7 this page draws on
Summary
They had long COVID, with mainly neurological symptoms, vertigo, and later kidney, bladder and gut pain. A dental crown brought a two- to four-week relapse. At 14 months they had three near-normal weeks, then crashed after a late night drinking and were back in bed. From around 15 months exercise began helping, and fluvoxamine may have helped their neurological symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- supplement · Not said
what if this one supplement that I ran out of and didn’t repurchase was the cure?
In context ↗ - heating pad · Helped
It has given me immense relief as long haul moves to different parts of my body
In context ↗ - fluvoxamine · Helped
I can’t know if it was the timing in my recovery or the SSRI, but fluvoxamine really helped my neuro symptoms.
In context ↗ - exercise · Helped
I found that around 15 months exercise started to help me rather than set me back.
In context ↗
Approaches: Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | long COVID with mainly neurological symptomsMy symptoms have always been primarily neurological, although the virus did take some fun detours to major organs along the way.In context ↗ | Not stated | |
| early 2022 | sound sensitivity and inability to watch TV or listen to music resolvedI had this too and it went away around 6 or 7 months.In context ↗ | Not stated | |
| 2022-05 | relapse after a dental crown was placedNot sure about laughing gas but I had a relapse following having a crown placed.In context ↗ | Moderate | |
| 2022-09 | three weeks feeling nearly 100%Fourteen months into long haul I went three weeks feeling nearly 100%.In context ↗ | Near normal | |
| 2022-09 | crashed 48 hours after staying up late drinking with friendsI got too confident and stayed up late drinking with friends ... It took 48 hours for the crash to hit, but now I’m back in bed with extreme fatigue, tinnitus, and nervous system dysfunction.In context ↗ | Moderate | |
| 2023-02 | exercise began helping rather than setting them back; fluvoxamine helped neuro symptomsI found that around 15 months exercise started to help me rather than set me back.In context ↗ | Mild | Fluvoxamine (Luvox) |
Symptoms mentioned
Their words about their symptoms
- Brain fog
My symptoms have always been primarily neurological, although the virus did take some fun detours to major organs along the way.
In context ↗ - Light & noise sensitivity
I had this too and it went away around 6 or 7 months.
In context ↗ - POTS & dysautonomia
some of the more severe ones like vertigo that flattened me and unequal pupils
In context ↗ - Tinnitus
now I’m back in bed with extreme fatigue, tinnitus, and nervous system dysfunction
In context ↗ - Pain & fibromyalgia
kidney pain, bladder pain
In context ↗ - Post-exertional malaise
It took 48 hours for the crash to hit
In context ↗
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