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Long COVID Mild → no benefitIll for 14 months

Long COVID fatigue bouts, barely able to sit up; therapy helped them cope, no improvement

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
14 months
Last post
May 2021
In their words
  • Condition: Long COVIDit’s been essential for helping me deal with long covid In context ↗
  • At worst: Mildable to survive the day and generally able to participate in life ... In the morning I even jog (super slow) for a little bit In context ↗
  • Now: No benefitI’ve experienced this pattern repeatedly in the months since the acute phase ... And then out of nowhere, another bout of THIS FUCKING FATIGUE hits me for a few days or a week at a time. In context ↗
  • Began after: COVIDI got Covid in March 2020.
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Comet 83603 caught COVID-19 in March 2020 with a 34-day acute phase that included three hospital trips. Afterwards they had breathlessness, a racing heart on exertion, brain fog, lost smell and taste and crushing fatigue that came in bouts leaving them barely able to sit up for days. Between bouts they could live fairly normally and jog slowly. They said therapy helped them cope emotionally with the illness.

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What they tried

Their words about each treatment
  • jog (super slow) · Not saidIn the morning I even jog (super slow) for a little bit and feel like maybe I’m even starting to get my fitness back. And then out of nowhere, another bout of THIS FUCKING FATIGUE hits me In context ↗
  • therapy with a mental health professional · HelpedTalking through those feelings with a professional has been enormously helpful. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
March 2020COVID-19, 34-day acute phase, three hospital tripsI got Covid in March 2020. Acute phase was 34 days, complete isolation from my family, all the bad stuff (intense fever, terrible cough, couldn’t breathe), three trips to hospital In context ↗
months since the acute phasemonth-long stretches of feeling alright, slow jogging, able to participate in lifeI have a stretch of about a month where I feel alright, I feel relatively clear-minded and able to survive the day and generally able to participate in life. In the morning I even jog (super slow) In context ↗
last week (April 2021)bout of crushing fatigue, barely able to sit up in bedLast week I was deep in one of these bouts. Could barely sit up in bed. Struggled to get downstairs to eat In context ↗
2021-05-06back out of the bout, living more slowly than beforeBut I still have shoes to tie, and places to go (much more slowly than I did before). I’m sure as hell still going to go. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Brain fogI’ve still had short breath, heart races with the simplest exertion, brain fog, no smell/taste In context ↗
  • BreathlessnessWill I ever even be able to take a full breath again? In context ↗
  • Heart symptoms & palpitationsheart races with the simplest exertion In context ↗
  • Muscle weaknessCould barely sit up in bed. In context ↗
  • Anxiety & low moodLot so feelings of grief, shame, frustration (at the best of times), hopelessness (at the worst of times). In context ↗

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