ME/CFS
Moderate → somewhat better
Moderate ME/CFS with buzzing nerves, somewhat better after low-dose naltrexone
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2024
In their words
- At worst: Moderate
CFS is still moderate, but that symptom itself faded
In context ↗ - Now: Somewhat better
it is nearly gone. Still have all other symptoms pretty bad
In context ↗ - Began after: nothing they could name
I don't know what triggered my CFS, possibly from my Hashimoto's (found that I had hashis while investigating my CFS symptoms).
In context ↗
Read from 27 of their posts and comments; links to the 22 this page draws on
Summary
A Reddit user described moderate ME/CFS with Hashimoto's, a buzzing nerve sensation, muscle twitching, heat intolerance and constipation. Low-dose naltrexone, slowly raised to 5 mg, was followed by the buzzing largely fading, though they were unsure it was the cause. Oxaloacetate gave no benefit. Work was capped at 12 hours a week before symptoms flared.
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What they tried
Also tried
dessicated thyroid· HelpedCitro-mag (high dose magnesium citrate)· Helpedplunges in the river· Helpedacupuncture· Helped · wore offhigh CBD weed· HelpedLDN (low dose naltrexone)· Helpedice hats· Helpedlight yoga· HelpedJameson probiotics (Costco)· Helpedsteam room· Helpedmeditation· No changeMyers IV therapy· No changeglutathione push· No changelaxatives· No changeoxaloacetate (benaGene)· No changealcohol· Worseelectrolytes and minerals· Not saidvoltaren· Not saidtiger balm· Not saidmuscle gun· Not saidsuper sleep tabs from Webber naturals· Not said
Their words about each treatment
- meditation · No change
After trying everything (drugs, meditation, alcohol) to escape with nothing working
In context ↗ - alcohol · Worse
I feel like trash immediately after one drink. Tried many times just to feel different as an escape
In context ↗ - dessicated thyroid · Helped
Now I'm on thyroid meds and my weight came back down to normal.
In context ↗ - electrolytes and minerals · Not said
My electrolytes are great as I take lots of them and also do IV therapy
In context ↗ - Myers IV therapy · No change
I do 100ml Myers IV therapy (lots of B vitamins I think). Don't notice any major help
In context ↗ - glutathione push · No change
Also get a glutathione push at the end which is supposed to help detox. But yeah, not life changing
In context ↗ - laxatives · No change
3 weeks of laxatives for constipation that had no effect
In context ↗ - Citro-mag (high dose magnesium citrate) · Helped
Citro-mag (high dose magnesium citrate) over enema for sure, clears everything out
In context ↗ - plunges in the river · Helped
I've just started doing plunges in the river by my house (~0°C) and I love it.
In context ↗ - acupuncture · Helped
Just started doing acupuncture which is helping a little.
In context ↗ - high CBD weed · Helped
Just started to smoke high CBD weed which is actually helping, really sick at the moment though, so taking a break from that.
In context ↗ - LDN (low dose naltrexone) · Helped
After 4 months of gradually increasing LDN, (2 or so years after it all started) it is nearly gone.
In context ↗ - ice hats · Helped
Ice hats have saved me
In context ↗ - light yoga · Helped
Yeah light yoga. Sometimes it's pretty much impossible, but I try to do 15mins a day. Really helps with general mobility.
In context ↗ - voltaren · Not said
Now I just have tons of electrolytes ,use voltaren and tiger balm.
In context ↗ - muscle gun · Not said
I also have a muscle gun that I use lightly to loosen things up.
In context ↗ - Jameson probiotics (Costco) · Helped
I find that one of the cheapest ones works best for me (by far).
In context ↗ - steam room · Helped
I have heat intolerance as well but find the steam actually helps.
In context ↗ - super sleep tabs from Webber naturals · Not said
I also take super sleep tabs from Webber naturals, because I did find it harder to stay asleep.
In context ↗ - oxaloacetate (benaGene) · No change
Even oxaloacetate at 2000mg a day had no positive effect
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | ME/CFS began, cause unknown, alongside Hashimoto'sI don't know what triggered my CFS, possibly from my Hashimoto's (found that I had hashis while investigating my CFS symptoms).In context ↗ | Moderate |
| 1.5 years in | buzzy nerve sensation largely fadedMine went away after 1.5 years. Only get little bits of it now.In context ↗ | Moderate |
| 2023-10-17 | returned to work, capped at 12 hours a weekI just started returning to work though and noticed that it comes back a bit stronger the more I work. My body seems capped at working 12h a weekIn context ↗ | Moderate |
| 2024-01-12 | still ill; naps bring on flu-like symptomsYeah, naps are a no go for me. Flu symptoms for a couple hours afterIn context ↗ | Moderate |
Adverse events
- Low-dose naltrexone“I also take super sleep tabs from Webber naturals, because I did find it harder to stay asleep.” In context ↗ Insomnia from treatment
Symptoms mentioned
Flu-like symptomsGut problemsNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Neuropathy & tingling
I'd say my nerve issues. That buzzy feeling. I had that really bad before.
In context ↗ - Post-exertional malaise
my body proved me wrong and 12h/wk was the max I could do sustainably without getting sick every week
In context ↗ - Temperature regulation
I have heat intolerance as well but find the steam actually helps.
In context ↗ - Flu-like symptoms
Yeah, naps are a no go for me. Flu symptoms for a couple hours after
In context ↗ - Gut problems
gave me relief after 3 weeks of laxatives for constipation that had no effect
In context ↗ - Sleep problems
I did find it harder to stay asleep
In context ↗ - Vision problems
Yes. I used to get that a lot.
In context ↗ - Pain & fibromyalgia
I get that too. Tried everything you mentioned and none of that works.
In context ↗