ME/CFS
Severe → no benefitIll for 5 months
ME/CFS unable to work or walk far, no better after supplements and an antibiotic
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 5 months
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
In early July of this year, I had a rapid onset of symptoms that were in line with CFS.
In context ↗ - At worst: Severe
I lost the ability to stand up or walk for more than a few moments without feeling out of breath and actions as small as holding my phone made my muscles ache
In context ↗ - Now: No benefit
Unfortunately I actually feel a bit worse
In context ↗ - Began after: COVID
I got a bunch of tests and it turned out that I had recently gotten covid, epstein-barr and strep throat
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Fell ill in early July 2024 with rapid-onset CFS-like symptoms after recent covid, EBV, strep throat and mould exposure; they lost the ability to work, do housework or walk far without breathlessness and moved back in with their parents. A functional medicine doctor prescribed supplements and an antibiotic, which they doubted. Four months in they were still as ill, and by December 2024 felt a bit worse, and they put college on hold.
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What they tried
Also tried
Vitamin D· No changesupplements· No changeanti fungal· Worseantibiotic for the strep· Not saiddetox the mold· Not saidshort daily walk· Not said
Their words about each treatment
- Vitamin D · No change
there wasn't anything abnormal except for Vitamin D which I was then supplemented with with no improvements
In context ↗ - supplements · No change
these supplements seem totally pointless
In context ↗ - antibiotic for the strep · Not said
she basically just prescribed supplements and an antibiotic for the strep which may still be present
In context ↗ - anti fungal · Worse
other than a few days when I had an adverse reaction to an anti fungal it's been tolerable
In context ↗ - detox the mold · Not said
we'll detox the mold and then these latent illnesses will dissolve
In context ↗ - short daily walk · Not said
I've been going on a short walk most days ... only maybe 10 minutes of walking I do get out of breath
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| early July 2024 | rapid onset of CFS-like symptomsIn early July of this year, I had a rapid onset of symptoms that were in line with CFS.In context ↗ | Severe |
| 2024-12-11 | still ill and feeling a bit worseUnfortunately I actually feel a bit worse, but other than a few days when I had an adverse reaction to an anti fungal it's been tolerable.In context ↗ | Severe |
Adverse events
- Antifungals (unspecified)“other than a few days when I had an adverse reaction to an anti fungal it's been tolerable” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Breathlessness
I lost the ability to stand up or walk for more than a few moments without feeling out of breath
In context ↗ - Pain & fibromyalgia
actions as small as holding my phone made my muscles ache
In context ↗ - Anxiety & low mood
I have OCD and suffer from anxiety
In context ↗