Bedbound with long COVID, improved then relapsed after reinfection; ivermectin helped
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 14 months
- Last post
- Apr 2023
In their words
- Condition: Long COVID
Caught another strain of omicron Aug 22- long haughling 5 months since
In context ↗ - At worst: Severe
I had LC with the delta strain bedbound
In context ↗ - Now: Relapsed
Was completely cured, then caught another strain August 2022 now have LC again.
In context ↗ - Began after: COVID
I had delta covid back in Oct 21- had long covid.
Read from 19 of their posts and comments; links to the 9 this page draws on
Summary
Long COVID began after a Delta infection in October 2021 and left her bedbound; an Omicron reinfection two months later cleared it almost entirely, leaving insomnia. A further reinfection in August 2022 brought long COVID back. Three weeks of ivermectin 15 mg daily under a long-COVID protocol eased palpitations and breathlessness, and she rated herself 65%, though new tremors appeared; by spring 2023 she was much better but not pre-illness.
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What they tried
What they credit
Also tried
Their words about each treatment
- ivermectin · Helped a lot
The ivermectin truly truly helped the palpitations and the inflammation I felt standing up and just doing anything pretty much.
In context ↗ - their long covid protocol · Helped
I feel almost 65% from following their long covid protocol.
In context ↗ - LDN · Worse
I took it tonight for the very first time. I'm up at 1:15am writing this because I woke up with anxiety and adrenaline.
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Oct 2021 | COVID Delta infection followed by long COVID; bedboundI had delta covid back in Oct 21- had long covid ... I had LC with the delta strain bedbound | Severe | |
| Dec 2021 | Omicron reinfection cleared the long COVID within about two weeks; only insomnia remainedCaught omicron Dec 21- completely healed only symptom I had was insomnia but was improving.In context ↗ | Near normal | |
| August 2022 | Another infection brought long COVID backCaught another strain of omicron Aug 22- long haughling 5 months sinceIn context ↗ | Moderate | |
| December 2022 | Ivermectin 15 mg daily for three weeks: palpitations and breathlessness nearly gone, new tremors and jerks appearedNow my heart palpitations shortness of breath are almost gone...I started getting new symptoms, neurological symptoms spams tremors jerks while falling sleep.In context ↗ | Mild | Ivermectin |
| January 2023 | Rated herself about 65% after following a long COVID protocolI feel almost 65% from following their long covid protocol.In context ↗ | Mild | Ivermectin |
| March 2023 | Off ivermectin, able to walk longer without tiring and seeing weekly progressmuch better, not precovid but def better than before ... Im able to walk for longer without getting tiredIn context ↗ | Mild | |
| April 2023 | Slowly getting betterHere I am slowly getting better….In context ↗ | Mild |
Adverse events
- Ivermectin“I started getting new symptoms, neurological symptoms spams tremors jerks while falling sleep.” In context ↗ Side effects
- Low-dose naltrexone“I took it tonight for the very first time. I'm up at 1:15am writing this because I woke up with anxiety and adrenaline.” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
horrible palpitations, out of breath scary stuff
In context ↗ - Breathlessness
Now my heart palpitations shortness of breath are almost gone
In context ↗ - Sleep problems
I did stay with insomnia but physically i was feeling great
In context ↗ - Neuropathy & tingling
neurological symptoms spams tremors jerks while falling sleep
In context ↗
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