ME/CFS
Mild → no benefitIll for 2 years
ME/CFS tiredness and painful joints for two years, supplements and diet didn't help
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 2 years
- Last post
- Feb 2025
In their words
- Condition: ME/CFS
I think I have cfs
In context ↗ - At worst: Mild
I can manage up to maybe 2 or 3 things a day (including school)
In context ↗ - Began after: nothing they could name
I haven't felt well rested for the past two years, maybe more
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A teenager in school who had not felt rested for two years, with constant tiredness, painful joints and energy for only two or three things a day. Iron, magnesium, multivitamins, diet and sleep changes did not help his fatigue, though birth control helped his periods. Over-the-counter supplements made him feel sicker, so he stopped them. He paced by scheduling tasks and used a cane when his leg hurt; a daily aquarium hyperfixation led to missed school and sleeping for two and a half days. He was still being tested for a cause.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- iron supplements · No change
we got iron supplements, magnesium, a load of vitamins, didn't help
In context ↗ - vitamin d supplements · Not said
magnesium supplements, vitamin d supplements
In context ↗ - birth control (gedarel) · Helped
I'm on the pill right now for the period stuff, and it helps a lot.
In context ↗ - more exercise · No change
I've tried less sleep, more sleep, less exercise, more exercise, different diets, nothing helps
In context ↗ - pacing · Not said
i guess I've been doing something similar to pacing? ... I write down what I have to do and I pick out certain things so that there's not too much.
In context ↗ - xaggitin xl · Not said
xaggitin xl 36mg
In context ↗ - fluoxetine · Not said
fluoxotine 40mg
In context ↗ - cane · Not said
I sometimes use a cane
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | constant tiredness and joint pain beganI haven't felt well rested for the past two years, maybe moreIn context ↗ | Mild |
| 2025-01-09 | burnout after daily aquarium visits, slept through 2.5 school daysI'm currently in burnout because I got hyperfixated on an aquarium and went there every day to the point that I've missed 2 and a half days of school just sleeping the whole timeIn context ↗ | Moderate |
| 2025-02-09 | still being tested; supplements made him feel sickI actively feel sick and generally a lot worse when I take supplementsIn context ↗ | Mild |
Adverse events
- “I actively feel sick and generally a lot worse when I take supplements.” In context ↗ Made symptoms worse
- Iron infusion / ferritin repletion“I almost stop eating and stop having an appetite, I get nauseous, my stomach starts hurting more” In context ↗ Gut side effects
- Iron infusion / ferritin repletion“my derealisation gets worse, my head hurts more often, and I get even more tired” In context ↗ Mood or psychiatric effects
- Iron infusion / ferritin repletion“I had to stop taking them because simply thinking about food made me feel sick” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeadaches & migrainePain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
I've missed 2 and a half days of school just sleeping the whole time
In context ↗ - Brain fog
writing, focusing, eating, walking, anything tires me out
In context ↗ - Sleep problems
I haven't felt well rested for the past two years
In context ↗ - Headaches & migraine
my head hurts more often
In context ↗ - Gut problems
I get nauseous, my stomach starts hurting more
In context ↗ - Anxiety & low mood
I'm diagnosed with adhd, asd, depression, anxiety, asthma
In context ↗