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Long COVID Moderate → recoveredIll 2.5 years before improving or writingNeeds ongoing treatment

Moderate to severe long COVID, now recovered after pacing and meditation

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2.5 years
Last post
Mar 2024
In their words
  • Condition: Long COVIDCaught covid April 2020 and developed long haul. In context ↗
  • At worst: Moderatemoderate/severe 2.5 year long haul In context ↗
  • Now: RecoveredConfident to say I'm 99.99% at this point. In context ↗
  • Began after: COVIDCaught covid April 2020 and developed long haul. In context ↗
Read from 14 of their posts and comments; links to the 5 this page draws on

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Summary

After COVID in April 2020 he developed long COVID with heavy fatigue, PEM, daily headaches, brain fog, POTS, gastritis and unrefreshing sleep, called it moderate to severe, and hit rock bottom in an early/mid 2022 crash; a 2021 vaccine did nothing. From late 2022 a self-taught nervous-system calming approach (pacing, meditation, breathing, visualisation) brought 90% recovery by December 2022 and 99.99% by 2023-2024.

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Asking aboutZephyr 98574’s story

What they tried

Also tried

stopped going on reddit and doom scrolling· HelpedOptimized diet/sleep/etc.· Helpedthe vaccine· No change
Their words about each treatment
  • the vaccine · No changeI did end up getting the vaccine in early/mid 2021 when most did, unfortunately it did nothing for my long haul. In context ↗
  • nervous system calming methods · Helped a lotStarted looking into nervous system calming methods ... The following approach is what lead me to near full recovery In context ↗
  • Meditation · HelpedMeditation (morning and night, guided, just find ones on youtube, no need to buy apps or anything) In context ↗
  • Breathing techniques · HelpedBreathing techniques - 5 seconds in, 8 seconds hold, 10 seconds exhale. Did this for like 15 minutes a day, was very calming for me. In context ↗
  • Relaxing visualization guided meditations · HelpedRelaxing visualization guided meditations - there are ones specifically that walk you through a calming landscape/environment like a lake or something. In context ↗
  • pacing · HelpedI paced myself. ... I only did activity when my symptoms were manageable In context ↗
  • stopped going on reddit and doom scrolling · HelpedI accepted this concept as the origin and stopped going on reddit and doom scrolling for research or bs cures. In context ↗
  • Optimized diet/sleep/etc. · HelpedOptimized diet/sleep/etc., which doesn't do much on its own In context ↗

Approaches: Brain retraining · Mind-body practices · Pacing

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
April 2020COVID infection, long haul beginsCaught covid April 2020 and developed long haul. In context ↗Moderate
early/mid 2022bad crash, hit rock bottomhad a pretty bad crash in early/mid 2022 and felt like I had hit rock bottom In context ↗Moderate
late 2022slow start of recovery, then exponentialMy recovery was very slow in the beginning (had zero results for many weeks) but ended up being exponential. In context ↗Moderate
December 2022about 90% recovered, only mild fatigue leftI consider myself about 90% recovered at this point In context ↗Near normal
September 2023doing great, almost fully recoveredDoing great, probably 99.99% now In context ↗Recovered
March 2024still 99.99%, continues calming practicesConfident to say I'm 99.99% at this point. In context ↗Recovered

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseheavy fatigue, PEM, daily headache and brain fog In context ↗
  • Brain fogdaily headache and brain fog In context ↗
  • POTS & dysautonomiaPOTS (had confirmed myocarditis even but that went away late 2020) In context ↗
  • Gut problemsgastritis/upper GI pain In context ↗
  • Sleep problemsunrefreshing sleep In context ↗
  • Neuropathy & tinglingweird brain zaps/vibrations In context ↗
  • Heart symptoms & palpitationshad confirmed myocarditis even but that went away late 2020 In context ↗
  • Anxiety & low moodwas considering assisted suicide at one point, very dark times In context ↗

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