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Long COVID Moderate → somewhat betterIll 2 years before improving or writing

Long COVID with 14-hour sleeps and too tired to read, somewhat better on Niagen

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 years
Last post
May 2024
In their words
  • At worst: Moderatenot being able to do basic physical things like walking for 10 minutes In context ↗
  • Now: Somewhat betterI’ve had significant cognitive improvements, though still nowhere near my previous functioning. In context ↗
  • Began after: COVIDfor overall long term benefits outside of LC
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

Long COVID from early 2022 left them on six months' leave in 2023; some days they slept 14 hours then lay on the floor for 10 hours, too tired to read or walk 10 minutes. Niagen (nicotinamide riboside) 500 mg twice daily, taken in a research study, gave large cognitive gains within about a month; by May 2024 they could do some complex work tasks for a little bit a day but stayed far from their old functioning. NAC did nothing.

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What they tried

Their words about each treatment
  • ginseng · No changeI don’t know that it has, but plan to keep taking it for overall long term benefits outside of LC. In context ↗
  • turmeric (with black pepper) · HelpedIt’s a bit early to be sure, but I seem to be having a few more better brain days In context ↗
  • virtual support group · HelpedI have found the virtual support group through my local research hospital helpful. In context ↗
  • restorative yoga class · HelpedIt made a big difference for me- the hardest part was the drive to and from the yoga studio. In context ↗
  • rest · HelpedI learned though that the best thing really is rest, even if it doesn’t feel like you’re making progress. In context ↗
  • niagen · Helped a lotNiagen is making a massive improvement for my cognitive impairments. ... Currently on month 3 taking daily 1000mg niagen (split into 500mg in the AM, 500mg in the PM). In context ↗
  • NAC · No changeI did take it prior for awhile based a rec from my neuropsych specialist- it didn’t make any noticeable difference In context ↗

Approaches: Mind-body practices · Radical rest · Supplements

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2022long COVID symptoms beganmy issues have been going on for nearly a year and a half In context ↗
2023declined while on six months' sick leave; got lost walking their own street, could not unload a dishwasherI declined to the point of getting lost walking down my own street, couldn’t understand how to unload a dishwasher ... sleeping 14 hours with laying on the floor in front of the wood stove
2024-03cognitive improvement on niagen, month 3 of daily dosingNiagen is making a massive improvement for my cognitive impairments. In context ↗NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP)
2024-05significant cognitive gains from niagen, still far from previous functioningI’ve had significant cognitive improvements, though still nowhere near my previous functioning. In context ↗NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP)

Symptoms mentioned

Their words about their symptoms
  • Brain fognot being able to read or listen to audiobooks without getting lost or too exhausted within a minute or two In context ↗
  • Sleep problemssleeping 14 hours In context ↗

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