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Support groups

19 people describe trying Support groups (10 with ME/CFS, 9 with long COVID). Of the 18 who said how it went, 17 say it helped, often with one symptom, and none got worse. 3 credit it as one reason they got better overall.

Everyone · 19 people

All 19 who tried it

How it went for everyone who tried it

Helped means they said it helped with what they took it for, which may be one symptom and not the illness.

94%
helped
17 of 18
6%
no change
1 of 18
0%
got worse
0 of 18

Shares are out of the 18 people who said how it went. 1 more tried it without saying how it went.

Show as a table
How it wentPeopleShare
Helped a lot00%
Helped1794%
No change16%
Worse00%
Much worse00%

Did it last, for everyone it helped?

  • None of the 17 people it helped said it wore off, whether or not they credit it for their improvement.

Read from what people wrote, and the more someone wrote, the more likely they are to mention it. Some people stop posting before saying, so the real number may be higher.

Everyone · 3 people

3 who credit it

Among the 3 who credit it with their improvement, here’s how they are now

Credit it means they say it’s one reason they got better: 3 say it was one of several things that helped.

0%
recovered or near normal
0 of 3
67%
much or somewhat better
2 of 3
33%
relapsed
1 of 3

Where each person was at the end of their story, or in their latest post that says how they are, compared with their worst point.

Show as a table
Outcome describedPeopleShare
Recovered00%
Near normal00%
Much better00%
Somewhat better267%
Relapsed133%

Did it last?

  • No one said its benefit wore off.
  • 1 of the 3 who credit it says they still need to keep doing something (not always this) to stay well.
3 who credit it

By how ill people were

Only the 3 who credit it, so people it didn’t help or made worse aren’t here. How they are now is their outcome overall, not the effect of this one treatment.

Severity at worstHow they are nownRecovered or near normal
Mild10%
Moderate10%
Severe10%
Show as a table
At worstOutcomePeopleShare
MildSomewhat better1 of 1100%
ModerateSomewhat better1 of 1100%
SevereRelapsed1 of 1100%

Adverse events

None of the 19 people who wrote about taking it described an adverse event they tied to it.

People don’t always write about every problem they had, so harms are likely under-reported.

How often it comes up

Posts that mention Support groups, per 1,000 posts each month. Hover or tap a point for the count.

051015201020142017202020232026
Show as a table
MonthPosts mentioning itAll postsPer 1,000
Oct 2009210519.0
Jan 201001410
Feb 201001130
Jun 201101090
Nov 201101240
Dec 201101990
Jan 2012323212.9
Feb 201201030
Mar 201201900
Apr 201201620
May 201203750
Jun 201212384.2
Jul 201202400
Aug 201224854.1
Sep 201255618.9
Oct 201205260
Nov 201245147.8
Dec 201226992.9
Jan 201315331.9
Feb 201304470
Mar 201314292.3
Apr 201304990
May 201326063.3
Jun 201316091.6
Jul 201326163.2
Aug 201305770
Sep 201303640
Oct 201335365.6
Nov 201313852.6
Dec 201325193.9
Jan 201429442.1
Feb 201428212.4
Mar 201424254.7
Apr 201403610
May 201416171.6
Jun 201434896.1
Jul 201414442.3
Aug 201416221.6
Sep 201405070
Oct 201426782.9
Nov 201425673.5
Dec 201416291.6
Jan 201517601.3
Feb 201518731.1
Mar 201541,2763.1
Apr 201509840
May 201531,4962.0
Jun 201541,0463.8
Jul 201561,2115.0
Aug 201539983.0
Sep 201541,0603.8
Oct 201501,2550
Nov 201521,2461.6
Dec 201529242.2
Jan 201621,2821.6
Feb 201601,0510
Mar 201601,0020
Apr 201669986.0
May 201671,0456.7
Jun 201611,2300.81
Jul 2016171,61910.5
Aug 201621,7291.2
Sep 201651,7852.8
Oct 201631,2202.5
Nov 201671,0926.4
Dec 201631,2112.5
Jan 201761,6603.6
Feb 201731,9881.5
Mar 201742,0781.9
Apr 201762,1332.8
May 201752,3702.1
Jun 201762,1942.7
Jul 201742,1831.8
Aug 201742,4661.6
Sep 2017102,1894.6
Oct 201723,0420.66
Nov 201761,9763.0
Dec 201722,1120.95
Jan 201852,6201.9
Feb 201872,1553.2
Mar 201862,6132.3
Apr 201892,2514.0
May 201862,8282.1
Jun 201893,8712.3
Jul 201813,0670.33
Aug 2018123,7573.2
Sep 201863,5121.7
Oct 201853,2611.5
Nov 201882,8612.8
Dec 201832,7541.1
Jan 201973,6721.9
Feb 2019102,7153.7
Mar 2019113,3173.3
Apr 201943,1411.3
May 201953,8551.3
Jun 2019183,3925.3
Jul 201933,3120.91
Aug 201943,9431.0
Sep 201964,0351.5
Oct 201993,9222.3
Nov 201963,5081.7
Dec 201983,6592.2
Jan 2020134,6502.8
Feb 202054,3741.1
Mar 202064,4751.3
Apr 202083,6902.2
May 202084,5431.8
Jun 2020255,7014.4
Jul 2020266,1044.3
Aug 20202010,3331.9
Sep 20203311,9582.8
Oct 20203214,5682.2
Nov 20202316,5461.4
Dec 20203620,7641.7
Jan 20214924,5622.0
Feb 20213424,6721.4
Mar 20213729,4761.3
Apr 20214928,5091.7
May 20213225,7911.2
Jun 20213727,8711.3
Jul 20215127,2201.9
Aug 20214230,8081.4
Sep 20214830,0741.6
Oct 20213022,1321.4
Nov 20213427,7221.2
Dec 20214131,8721.3
Jan 20224942,3171.2
Feb 20225738,6971.5
Mar 20225244,3051.2
Apr 20224344,3330.97
May 20225550,5941.1
Jun 20224949,0581.00
Jul 20227153,4851.3
Aug 20225154,4550.94
Sep 20225956,9361.0
Oct 20224058,5110.68
Nov 20227059,1981.2
Dec 20226661,5761.1
Jan 20236961,0041.1
Feb 20236050,1331.2
Mar 20236659,9251.1
Apr 20236354,2511.2
May 20238557,7681.5
Jun 20238252,6791.6
Jul 20238456,4011.5
Aug 202310165,4351.5
Sep 20238661,8351.4
Oct 20238658,4191.5
Nov 20237253,6621.3
Dec 20238660,6431.4
Jan 202410471,8181.4
Feb 202410470,0451.5
Mar 202410168,2611.5
Apr 20248464,3741.3
May 202410867,6981.6
Jun 20248964,7201.4
Jul 202411365,3351.7
Aug 20248468,5171.2
Sep 20248770,1681.2
Oct 20248772,6071.2
Nov 20247871,8021.1
Dec 20249974,4011.3
Jan 202510877,9091.4
Feb 20258365,1101.3
Mar 20258069,9051.1
Apr 20257161,6061.2
May 20259065,7331.4
Jun 20259660,5401.6
Jul 20257062,1051.1
Aug 20259064,5781.4
Sep 202510661,7041.7
Oct 20258359,2041.4
Nov 20258758,9441.5
Dec 20258362,8301.3
Jan 202613563,3212.1
Feb 20269353,0851.8
Mar 202612859,2082.2
Apr 20269153,9891.7
May 202611757,5412.0
Jun 20268055,3011.4
Jul 202613856,3912.4
Aug 202610156,8251.8
Sep 20269457,1431.6

Forum and Reddit posts, 4,007,898 in all, counted per month. A mention means the post names the treatment, not that the writer took it. All trends

Everyone · 19 people

All 19 people who tried it

  • Unable to walk for long with ME/CFS, now somewhat better after treat food and supplements

    Somewhat better Breeze 61860 ME/CFS Moderate at worst reddit.com Jul 2025

    A person with ME/CFS, fibromyalgia and ADHD who could not walk for a long time and needed recovery days even within their limits. In May 2025 they were recovering from an overdoing episode and could not yet do productive work or hobbies. In July 2025 they…

  • Long COVID with brain fog and severe depression, now somewhat better with therapy

    Somewhat better Badger 17938 Long COVID Mild at worstIll 2 years before improving or writing reddit.com Aug 2023

    Long COVID began in June 2021; they initially used steroids and narcolepsy medication to keep working, but stopped steroids because of mental side effects. Brain fog, dizziness, breathlessness, gut problems and severe depression followed. Myers cocktail IV…

  • Long COVID relapse: shaking, nerve pain, improving on meds but unable to work

    Relapsed Badger 53841 Long COVID Severe at worstIll 3.5 years before improving or writing reddit.com Aug 2023

    Badger 53841 developed long COVID in March 2020 and, fuelled by methylphenidate and work accommodations, taught second grade through the 2021-22 school year, believing they had recovered. An emotional situation in September 2022 triggered a relapse as bad as…

  • ME/CFS with fatigue and crashes, now a bit better with pacing and therapy

    Somewhat better Doesn’t credit it · HelpedWave 89510 ME/CFS Moderate at worstIll 3.5 years before improving or writing reddit.com Oct 2026

    Wave 89510 became suddenly ill with ME/CFS in early 2023, with fatigue, crashes, sleep problems, headaches, nausea and later heart-rate rises on standing. An ER visit and inpatient stay worsened fatigue. Pacing helped, and therapy and support groups helped…

  • ME/CFS for eight years, now much better after quitting vaping and myofascial physiotherapy

    Much better Doesn’t credit it · HelpedOtter 76921 ME/CFS Moderate at worstIll 8 years before improving or writing reddit.com Sep 2026

    Otter 76921, a 29-year-old man, had CFS symptoms for about eight years after a car accident and viral infection, spending over 100k on treatments. For the first six years he had no faith and wanted to end his life daily. He improved to about 65%, working…

  • Bedbound with ME/CFS then housebound, now somewhat better after pacing

    Somewhat better Doesn’t credit it · Not saidGull 39949 ME/CFS Severe at worstIll 11 months before improving or writing reddit.com Aug 2026

    Their first month of CFS was spent in bed, then three months of part-time office work, then housebound and working from home. After quitting work in December 2025 their headaches and poor sleep became manageable and they could walk 15 minutes with an hour's…

  • 90% bedbound with ME/CFS, remission on LDN, then relapsed to mostly bedbound

    Relapsed Doesn’t credit it · HelpedFjord 82756 ME/CFS Severe at worstIll 12 years before improving or writing reddit.com Jul 2026

    Fjord 82756 dates their health decline to venlafaxine, which they came off more than ten years ago, and was 90% bedbound with ME/CFS by 2023, with chronic migraine and fibromyalgia too. After 18 months bedbound, they began low-dose naltrexone (4.5 mg) around…

  • Long COVID, mostly in bed and suicidal, now much better with running and SSRIs

    Much better Doesn’t credit it · HelpedCedar 27697 Long COVID Severe at worstIll 4 years before improving or writing reddit.com Dec 2025

    Cedar 27697 caught COVID in December 2021 and developed POTS, brain fog, exhaustion, insomnia and severe depression. From March to June 2023 they were mostly in bed and suicidal. They credit regular running, gym work and SSRIs with rebuilding an active life,…

  • Couch-bound with long COVID brain fog, vision problems and PEM, now much better with time

    Much better Doesn’t credit it · HelpedGlade 97045 Long COVID Severe at worstIll 5 years before improving or writing reddit.com Nov 2025

    A very fit engineer caught COVID-19 in October 2020 and was couch-bound almost overnight with brain fog, vision problems, tinnitus and PEM. Long COVID clinics and scans did not help, and about 30 supplements largely did not help, though natto Serra seemed to…

  • Moderate to severe ME/CFS, no baseline yet, pacing and Nurtec tried

    No benefit Doesn’t credit it · HelpedPond 27339 ME/CFS Severe at worst reddit.com Oct 2025

    A Reddit user with ME/CFS described being newly diagnosed and still learning to pace, self-rating as moderate to severe and saying they had not yet found a baseline. Pacing had so far prevented a big crash. Nurtec taken as needed helped without side effects,…

  • Long COVID brain fog and crashes, work ability shot, no benefit; Visible for pacing

    No benefit Doesn’t credit it · HelpedQuail 12383 Long COVID Moderate at worst reddit.com Jul 2025

    A Reddit user who described themselves as more mildly to moderately affected than most, with brain fog, light and noise sensitivity, orthostatic stress and tachycardia during crashes, said their ability to work was shot. They rested, took fluids and…

  • Exhausted with ME/CFS, worse for a month after a flight, still moderate-severe

    No benefit Doesn’t credit it · HelpedAlder 37778 ME/CFS Moderate at worst reddit.com May 2025

    A Reddit user with ME/CFS wrote in May 2025 that a 1h10min flight to see their boyfriend, taken while already exhausted, left them feeling worse for a month, going from mild-moderate to moderate-severe. They felt their body did not use nutrients or oxygen…

  • Long COVID with pain, breathlessness, brain fog and insomnia, now somewhat better

    Somewhat better Doesn’t credit it · No changeTrail 44570 Long COVID Severe at worstIll 4 years before improving or writing reddit.com May 2025

    Caught COVID in April 2021 and was ventilated in intensive care for a week, then spent about a month in hospital. Long COVID brought hair loss, nerve and joint pain, breathlessness, insomnia, brain fog and anxiety, with new symptoms appearing as others…

  • ME/CFS, barely leaving home, improved after TMS and acupuncture then relapsed

    Relapsed Doesn’t credit it · HelpedCreek 62976 ME/CFS Moderate at worstIll 8 years before improving or writing reddit.com Nov 2024

    Creek 62976 had CFS for about eight years, at worst unable to hold a part-time job and barely able to leave their apartment. In late 2023 they reported feeling almost like their pre-illness self after TMS, acupuncture and TCM, a blood-sugar-stabilising diet…

  • Long COVID with 14-hour sleeps and too tired to read, somewhat better on Niagen

    Somewhat better Doesn’t credit it · HelpedCreek 23915 Long COVID Moderate at worstIll 2 years before improving or writing reddit.com May 2024

    Long COVID from early 2022 left them on six months' leave in 2023; some days they slept 14 hours then lay on the floor for 10 hours, too tired to read or walk 10 minutes. Niagen (nicotinamide riboside) 500 mg twice daily, taken in a research study, gave…

  • ME/CFS, acupuncture and Chinese herbs gave more energy for years before relapse

    Relapsed Doesn’t credit it · HelpedBeech 70382 ME/CFS Mild at worst reddit.com Jan 2024

    Beech 70382 had CFS with no diagnosis beyond it and no Western treatment. Acupuncture and Chinese herbs gave more energy over three or four months, and they felt good for years before the illness returned; it was back by 2023. A move to dry Colorado, a diet…

  • Long COVID that seemed fatal, now close to normal after relocating for world-class care

    Near normal Doesn’t credit it · HelpedFox 17427 Long COVID Ill 16 months before improving or writing reddit.com Aug 2022

    Fox 17427 described long COVID that left them expecting to die within the year; they wrote out instructions for their soon-to-be widow on running the household and fought hard for 16 months. They credited relocating to an area with world-class medical care…

  • Long COVID, finding a doctor-run support group extremely helpful

    Outcome unclear Doesn’t credit it · HelpedOwl 40470 Long COVID reddit.com Jun 2022

    The user's only post replies to a long COVID thread, sharing that a support group their doctor's office put together was extremely helpful for them and their fiancé and recommending asking a primary care provider to ask peers about anything they may come…

  • ME/CFS with crashes and a year disoriented, now somewhat better with pacing

    Somewhat better Doesn’t credit it · HelpedCedar 67396 ME/CFS Moderate at worstIll 4 years before improving or writing reddit.com Mar 2022

    Fell ill around 2006 and worked part time from home for four years, repeatedly crashing, before having to leave the job and spending a year disoriented. They credit pacing, cutting out activities outside the home and disability income with feeling better day…

The first 3 credit Support groups for their improvement; the other 16 tried it without crediting it.

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