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Long COVID Moderate → somewhat betterIll 18 months before improving or writing

Long COVID symptoms on exertion, no longer working, now somewhat better with Pepcid

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
18 months
Last post
Aug 2023
In their words
  • Condition: Long COVIDJanuary 2023 was my 2nd infection. First was February 2022, and the LC symptoms began after In context ↗
  • At worst: ModerateI no longer work. After infection #2 I have reduced how physical I am and feel like a shell of a person In context ↗
  • Now: Somewhat betterI have done more in the last few days than I’ve been able to in a long time. In context ↗
  • Began after: COVIDFirst was February 2022, and the LC symptoms began after, but only with physical exertion. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

Dusk 68274's long-COVID symptoms began after a February 2022 infection, at first only with physical exertion while still doing a physical job. They no longer work; after a second infection in January 2023 they reduced activity and felt like a shell of a person, but it was the only way to maintain a moderate level of wellness. Pepcid 10mg in July 2023 let them do more than in a long time.

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What they tried

Their words about each treatment
  • Cyclobenzaprine · HelpedThey were a major Covid symptom for me (I was prescribed Cyclobenzaprine) and though reduced haven’t completely gone away. In context ↗
  • reduced physical activity · HelpedI have reduced how physical I am and feel like a shell of a person but it’s the only way for me to maintain a moderate amount of wellness. In context ↗
  • Guanfacine · HelpedI was prescribed Guanfacine 1mg for brain fog, but I am ADHD inattentive type so it has helped my focus a bit In context ↗
  • Pepcid · HelpedI started Pepcid 10mg last week ... I have done more in the last few days than I’ve been able to in a long time. In context ↗

Approaches: H2 blockers · Pacing

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
February 2022First COVID infection; long-COVID symptoms began afterwards, only after physical exertionFirst was February 2022, and the LC symptoms began after, but only with physical exertion. In context ↗Mild
January 2023Second COVID infection; stopped working and cut back physical activity, feeling like a shell of a personI no longer work. ... feel like a shell of a person In context ↗Moderate
2023-07-09Able to do more than in a long time after starting PepcidI have done more in the last few days than I’ve been able to in a long time. In context ↗ModerateFamotidine (Pepcid)
2023-08-17Not working; limiting physical activity to keep a moderate level of wellnessit’s the only way for me to maintain a moderate amount of wellness. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Brain fogI was prescribed Guanfacine 1mg for brain fog In context ↗
  • Post-exertional malaiseafter working I’d get Covid symptoms all over again at night In context ↗
  • Pain & fibromyalgiaPainful, enduring, muscle spasms, worse at night. In context ↗
  • POTS & dysautonomiamy CFS, POTS, Daughter could use the support too In context ↗

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