Long COVID
Mild → somewhat betterIll 6 months before improving or writing
Long COVID tingling and brain fog for six months, somewhat better with pacing, meditation
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 6 months
- Last post
- Jan 2023
In their words
- Condition: Long COVID
6 months now, and have yet to find anyone else with this report!
In context ↗ - At worst: Mild
I am getting better at pacing, but I can’t continue to work less.
In context ↗ - Now: Somewhat better
Over time it has calmed to a more localized tingling sensation
In context ↗ - Began after: COVID
I have this same thing! 6 months now, and have yet to find anyone else with this report!
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Sparrow 54376 reported six months of long-COVID symptoms with an overheating head, scalp tingling and a crawling sensation, and during flares could not think, look at screens or read. Brain and neck MRI, blood tests, EKG, Holter monitor, sinus CT and scope came back normal. Over time the tingling calmed and became more localised, and meditation and pacing were helping, but they could not continue to work less and called it exhausting and depressing.
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What they tried
Their words about each treatment
- Meditation, mostly Non Sleep Deep Rest scripts or yoga nidra · Helped
Meditation is helping, mostly Non Sleep Deep Rest scripts or yoga nidra.
In context ↗ - pacing · Not said
I am getting better at pacing, but I can’t continue to work less.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about July 2022 | Illness began with a severe headache and scalp tinglingit started out as a really bad headache between my eyes and tingling all over my scalpIn context ↗ | Mild |
| 2023-01-14 | Tingling calmed and localised; still working reduced hours and pacingOver time it has calmed to a more localized tingling sensation, mostly around my foreheadIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I can’t think, look at screens, or read when this is going on.
In context ↗ - Neuropathy & tingling
tingling all over my scalp, with a sensation like something is crawling under my skin
In context ↗ - Headaches & migraine
it started out as a really bad headache between my eyes
In context ↗ - Post-exertional malaise
I can usually tell I have over done it when I start to feel the tingles between my eyes.
In context ↗ - Anxiety & low mood
This is exhausting and so incredibly depressing.
In context ↗