ME/CFS
Outcome unclearNeeds ongoing treatment
Bedbound most of day with ME/CFS, still brain fog and pain, using radical rest and therapy
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
I got a Nintendo Switch when my mecfs took a nosedive
In context ↗ - At worst: Severe
it was much worse than it is now and I was bed bound most of the day
In context ↗ - Began after: COVID
it’s a different world now as a long hauler
Read from 36 of their posts and comments; links to the 15 this page draws on
Summary
It started with a viral illness and early on they were bedbound most of the day. Improvement came slowly, was set back by a sick child's visit, and a wedding followed by a rough honeymoon crash. Later gains they credit to radical rest, therapy, strict masking and flexible work from home, which let them keep working full time. They describe slow ongoing improvement, with brain fog, chronic pain and sweats still around.
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What they tried
Also tried
radical rest· Helped a lotCBD· Helpedtherapy with a trauma-informed therapist· HelpedN95 masks and strict indoor masking· Helpedantidepressants (not Lexapro)· Worsestimulant for ADHD (Adderall)· Worse
Their words about each treatment
- antidepressants (not Lexapro) · Worse
Nah, those made it worse, but for me cbd helps
In context ↗ - stimulant for ADHD (Adderall) · Worse
it made me push myself past my limits (and not notice some things, like hunger or needing a break) and led to some nasty crashes
In context ↗ - CBD · Helped
for me cbd helps
In context ↗ - therapy with a trauma-informed therapist · Helped
Therapy, with a really good therapist, has helped me quite a bit.
In context ↗ - radical rest · Helped a lot
Radical rest has been a game changer for me!
In context ↗ - N95 masks and strict indoor masking · Helped
masking strictly indoors to avoid illness has helped me make strides in recovery
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | developed ME/CFS and pushed past their limitsI pushed too hard to keep up with my old pace after developing it and wrecked my baseline.In context ↗ | Not stated | |
| — | bedbound most of the daywhen it was much worse than it is now and I was bed bound most of the dayIn context ↗ | Severe | |
| — | gradual improvementI had gradual improvement after getting it, for awhile and nothing too miraculous.In context ↗ | Moderate | |
| — | crashed after someone brought a sick child aroundThen someone brought a sick kid around me. Bad time, got me good.In context ↗ | Moderate | |
| — | improved again but plateaued below previous levelThen it kinda got better, but not as much and plateaued.In context ↗ | Moderate | |
| — | rough crash after full-tilt wedding planning and honeymoonMy wedding mistake was going full-tilt on planning + DIY and not prioritizing rest, then had the most epically rough honeymoon crash.In context ↗ | Moderate | |
| 2026-01-31 | slow recovery while working full time from homeSometimes progress is so slow it feels like it isn’t happening, but then something will make me look back and realize how far I’ve come in sloooooowly bouncing back.In context ↗ | Mild | Radical rest |
Adverse events
- Escitalopram (Lexapro)“Not lexapro, but yes, for me it was worsening symptoms.” In context ↗ Made symptoms worse
- Escitalopram (Lexapro)“Nah, those made it worse, but for me cbd helps” In context ↗ Made symptoms worse
- Amphetamine salts (Adderall)“it made me push myself past my limits (and not notice some things, like hunger or needing a break) and led to some nasty crashes” In context ↗ Made symptoms worse
- Amphetamine salts (Adderall)“quality of life went up overall after the initial super-fatigue of withdrawal” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
PEM crash for what. So I felt more normal?
In context ↗ - Brain fog
the fresh air helps with brain fog and waking up a bit
In context ↗ - Pain & fibromyalgia
I also have chronic pain and it helps quite a bit
In context ↗ - Temperature regulation
For awhile I was having gnarly night sweats too, but those cleared up.
In context ↗ - Anxiety & low mood
which doesn’t help the anxiety that usually makes things only worse for me
In context ↗