Long COVID
Mild → no benefitIll for 3 yearsNeeds ongoing treatment
Long COVID with POTS and migraines, still managing; tried beta blockers and antihistamines
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- Nov 2025
In their words
- Condition: Long COVID
My most debilitating LC symptoms are POTS + joint pain and the costochondritis I was diagnosed with in 2012 has become way worse.
In context ↗ - At worst: Mild
I’m fairly mild, but hot weather makes me useless.
In context ↗ - Now: No benefit
No and unfortunately I won’t, ever, because my chronic illnesses don’t have cures, only symptom management.
In context ↗ - Began after: COVID
they gave me COVID IN 2022, assholes.
In context ↗ - Says they never had: Brain fog
I’m extremely lucky and haven’t experienced cognitive impairment from COVID-19.
- Says they never had: Post-exertional malaise
I don’t deal with PEM (I don’t have ME/CFS)
Read from 56 of their posts and comments; links to the 27 this page draws on
Summary
Island 79294, a 31-year-old woman, developed long COVID after a 2022 infection, with POTS, histamine intolerance, joint pain and at least seven days of migraines a month. She called herself fairly mild and said her conditions could be managed, not cured. Beta blockers and antihistamines helped her heart rate and symptoms, and ketamine infusions, half covered by insurance, helped her PTSD and depression.
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What they tried
Also tried
intravenous ketamine therapy· Helped a lotstrattera· Helped a lotmold avoidance / moving· Helped a lottopical prescriptions (Retin-a, spironolactone, clindamycin, azelaic acid)· Helped a lotEpiPen· Helped a lotglasses / contacts· Helped a lotpropanolol· HelpedZyrtec / Benadryl· HelpedZyrtec / Benadryl· HelpedZoloft / SNRI / antidepressants· Helped · wore offadderall· HelpedAtivan· Helpedtherapy· Helpedambien· Helpednasal surgery· Helpedlactaid· Helpeddairy elimination· HelpedPilates· Helpedcompression socks· No changeguanfacine· WorseLiquid IV / LMNT electrolyte packets· Worsemelatonin· Not saidpsilocybin / shrooms· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- propanolol · Helped
I still love exercise as long as I keep a steady diet of propanolol in my system!
In context ↗ - Zyrtec / Benadryl · Helped
Antihistamines and a very low dose of beta blockers have really helped me so far.
In context ↗ - intravenous ketamine therapy · Helped a lot
I did intravenous ketamine therapy in 2023 and once this year for my PTSD and depression.
In context ↗ - Zoloft / SNRI / antidepressants · Helped
I was on an antidepressant for a few years and it helped me immensely
In context ↗ - adderall · Helped
I’ve been taking adderall and strattera for my adhd for over a decade now
In context ↗ - strattera · Helped a lot
my strattera actually helps so much with my memory.
In context ↗ - guanfacine · Worse
I actually tried it once from a psych for unrelated issues and I reacted poorly to it.
In context ↗ - Ativan · Helped
I had to take 1mg Ativan to calm me down enough that I’ll be able to fall asleep at my normal time tonight.
In context ↗ - melatonin · Not said
I also take melatonin at night.
In context ↗ - therapy · Helped
What helped was a shit-ton of therapy, a 6 year stint of antidepressants, and eventually around 15 to 20 intravenous (legal, medically induced) k-holes
In context ↗ - psilocybin / shrooms · Not said
I partook in large doses of psilocybin unrelated to long covid prior to the pandemic
In context ↗ - ambien · Helped
I was prescribed ambien for a short period of time and it made me sleep on its own.
In context ↗ - nasal surgery · Helped
I still have issues with my left ear, always have, but it has improved remarkably since my nasal airways were essentially rebuilt / my nose works properly now.
In context ↗ - mold avoidance / moving · Helped a lot
when I left that place, it was life or death, due to a severe allergy. Haven’t had anaphylaxis since
In context ↗ - compression socks · No change
I used to use compression socks and I didn’t like them, they’re not very comfortable.
In context ↗ - Liquid IV / LMNT electrolyte packets · Worse
Liquid IV contains b6 and I drank it every morning - my blood tests came back and my long covid doctor told me to stop consuming anything with b6 immediately because my levels were too high
In context ↗ - lactaid · Helped
I’ll take a double dose of lactaid tabs to allow myself to have one of my favorite dairy foods or treats.
In context ↗ - dairy elimination · Helped
I cut those things out of my diet and it gradually went away
In context ↗ - topical prescriptions (Retin-a, spironolactone, clindamycin, azelaic acid) · Helped a lot
All have been solved by my topical prescriptions and skincare routine though + not eating the dairy I’m sensitive too
In context ↗ - Pilates · Helped
when I was dealing with exercise intolerance and joint flare-ups in my knees the only thing I could do was Pilates and that was all laying down, so it was doable.
In context ↗ - EpiPen · Helped a lot
only the ER and EpiPens could help me.
In context ↗ - glasses / contacts · Helped a lot
My vision was blurred before the pandemic and it turned out I needed regular glasses / contacts. That’s the only thing that gave me relief.
In context ↗ - COVID vaccination as treatment · Not said
I get mine every year, it usually just makes me a little bit tired. ... If I get more than one shot at once my body freaks out.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | COVID infection caught at a concertthey gave me COVID IN 2022, assholes.In context ↗ | Mild |
| 2025-10-24 | exercise intolerance improved; doing physical activity on her ownMy exercise intolerance has improved as of late also, so I am getting physical activity in on my ownIn context ↗ | Mild |
Adverse events
- Propranolol (Inderal)“Propanolol has never helped with my migraines and has caused them in some cases even at extremely low doses.” In context ↗ Made symptoms worse
- Propranolol (Inderal)“they sent in 10mg twice per day which was my previous dose and it was too much for me” In context ↗ Side effects
- Guanfacine“I actually tried it once from a psych for unrelated issues and I reacted poorly to it.” In context ↗ Side effects
- Sertraline (Zoloft)“the first antidepressant I tried was more likely to cause bad physical side effects (like vomiting and nausea) for me starting at 20mg” In context ↗ Gut side effects
- COVID vaccination as treatment“I get mine every year, it usually just makes me a little bit tired. ... If I get more than one shot at once my body freaks out.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaTemperature regulation
Their words about their symptoms
- POTS & dysautonomia
I have POTS, immune system dysfunction, suspected MCAS, hypermobile
In context ↗ - Mast cell (MCAS) & allergies
I’m hyper mobile, have histamine intolerance
In context ↗ - Pain & fibromyalgia
Now I’m beyond exhausted and my chronic pain is worse than usual.
In context ↗ - Headaches & migraine
I suffer with migraines at least 7 days of each month
In context ↗ - Heart symptoms & palpitations
It’s over when my beta blockers wear off and my tachycardia reappears.
In context ↗ - Temperature regulation
I’m fairly mild, but hot weather makes me useless.
In context ↗ - Anxiety & low mood
my depression my entire life has been due to PTSD
In context ↗