ME/CFS with exhaustion, pain and difficulty thinking; still no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 10 years
- Last post
- Jun 2025
In their words
- Condition: ME/CFS
I can walk 10 miles might lead one to think that I don’t actually experience chronic fatigue
In context ↗ - At worst: Mild
I’ve missed almost 300 days of work in the last year and a half.
In context ↗ - Now: No benefit
I’m not recovering at all
In context ↗ - Began after: nothing they could name
I’ve been dealing with health issues for a decade.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 34-year-old who had had health issues for a decade described exhaustion, pain, difficulty thinking clearly and depression. An active outdoor job with nearly 10 miles of walking a day left them not recovering and missing almost 300 days of work in 18 months. They were hospitalised after being suicidal, and a medicine prescribed for their symptoms also made them feel suicidal; medication for depression was not working and they felt dark about the future.
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What they tried
Also tried
Their words about each treatment
- active outdoor job, walking nearly 10 miles a day · Worse
I thought that if I just did it every day it would get easier, but it’s only getting more and more difficult.
In context ↗ - eating well · Not said
I was eating well
In context ↗ - prioritizing rest and sleep · Not said
I was prioritizing rest and sleep
In context ↗ - medication · Worse
The medicine I was prescribed to help with my symptoms made me feel suicidal also.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 2015 | health issues beganI’ve been dealing with health issues for a decade.In context ↗ | Not stated |
| last year | took an active outdoor job walking nearly 10 miles a day and stopped recoveringNow I walk nearly 10 miles a day and I’m so exhausted, I’m not recovering at all.In context ↗ | Mild |
| 2025-06-17 | suicidal, hospitalised, on medication that was not workingI recently got out of a mental hospital because I was suicidal.In context ↗ | Mild |
Adverse events
- Antidepressants (unspecified)“The medicine I was prescribed to help with my symptoms made me feel suicidal also.” In context ↗ Suicidal thoughts or attempt
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’ve always walked a lot and I thought that if I just did it every day it would get easier, but it’s only getting more and more difficult.
In context ↗ - Brain fog
I can’t think clearly
In context ↗ - Pain & fibromyalgia
everything hurts
In context ↗ - Anxiety & low mood
I know I’m struggling with depression
In context ↗