Moderate/severe ME/CFS, now much better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 19 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
I got Covid right around the 15 year mark of having ME/CFS.
In context ↗ - At worst: Severe
moderate/severe for the first 3-4 years
In context ↗ - Now: Much better
I had gone from moderate/severe for the first 3-4 years to moderate for about 8 years, then to mild/moderate (where I continue to be).
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Had post-viral fatigue at 23, too foggy to drive or attend grad school, and recovered within four or five months. ME/CFS returned at 39 with early menopause and never remitted: moderate/severe for three or four years, then moderate for eight, then mild/moderate. COVID at the 15-year mark did not lower their baseline much but took a long while to get back from and left new food sensitivities; colds usually left them slightly better.
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What they tried
What they credit
Their words about each treatment
- smoking · Helped
I smoked for a year when my ME/CFS was more severe and it actually did seem to help some.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 39 | ME/CFS returned with early menopause and never remitted; moderate/severe for the first 3-4 yearsAt 39yo, I started early menopause and that brought it all back and I never recovered that time.In context ↗ | Severe |
| 3-4 years after onset | improved from moderate/severe to moderatehad gone from moderate/severe for the first 3-4 years to moderate for about 8 yearsIn context ↗ | Moderate |
| about 11-12 years after onset | improved to mild/moderatethen to mild/moderate (where I continue to be)In context ↗ | Mild |
| 15 year mark of ME/CFS | COVID infection; slow return to baseline and new food sensitivitiesIt didn't appreciably lower my baseline, but it took a long while to get back to it, and I got a couple new food sensitivities into the bargain.In context ↗ | Mild |
| 2026-04-08 | still mild/moderate, with PEM after overexertionThis often happens to me if I overexert.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
This often happens to me if I overexert.
In context ↗ - Brain fog
It was so bad I couldn't drive (too much brain fog)
In context ↗ - Sleep problems
Yes. I think it's pretty typical to feel like crap when you wake up in the morning.
In context ↗
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