ME/CFS for over 20 years with fatigue and brain fog, somewhat better on testosterone
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 20 years
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
I’ve had ME/CFS for over 20 years
In context ↗ - Now: Somewhat better
have noticed a significant decrease in symptoms since I started testosterone ... they’re much less severe
Summary
Gull 69140 has had ME/CFS for over 20 years, with fatigue, brain fog and anxiety that come back whenever testosterone levels get low. Starting testosterone brought a significant decrease in symptoms and a large increase in energy, and low testosterone levels bring the fatigue, brain fog and anxiety straight back. Flare-ups still happen after burning out, but are much less severe and easier to recover from.
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What they tried
What they credit
Their words about each treatment
- testosterone · Helped a lot
I’ve had ME/CFS for over 20 years ... while I have definitely had flare ups since being on T ... they’re much less severe and I find it easier to get back to baseline
In context ↗
Approaches: Sex hormones
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| onset | ME/CFS for over 20 yearsI’ve had ME/CFS for over 20 years, so I’m pretty familiar with normal energy levels vs symptomsIn context ↗ | |
| 2024-06-15 | significant symptom decrease and more energy on testosteroneI’m transmasc and have noticed a significant decrease in symptoms since I started testosterone! The increase in energy is wild.In context ↗ | Testosterone |
| 2024-06-15 | still flares when burned out, but milder and easier to recover fromthey’re much less severe and I find it easier to get back to baselineIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
while I have definitely had flare ups since being on T - usually happens whenever I burn myself out which is constantly
In context ↗ - Brain fog
I’m so fatigued and sluggish and brainfoggy and anxious
In context ↗
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